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Monitoring HIV Care in the United States - Indicators and Data Systems (Paperback)
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Monitoring HIV Care in the United States - Indicators and Data Systems (Paperback)
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The number of people living with HIV/AIDS (PLWHA) in the United
States is growing each year largely due both to advances in
treatment that allow HIV-infected individuals to live longer and
healthier lives and due to a steady number of new HIV infections
each year. The U.S. Centers for Disease Control and Prevention
(CDC) estimates that there were 1.2 million people living with HIV
infection in the United States at the end of 2008, the most recent
year for which national prevalence data are available. Each year,
approximately 16,000 individuals die from AIDS despite overall
improvements in survival, and 50,000 individuals become newly
infected with HIV. In 2011, the CDC estimated that about three in
four people living with diagnosed HIV infection are linked to care
within 3 to 4 months of diagnosis and that only half are retained
in ongoing care. In the context of the continuing challenges posed
by HIV, the White House Office of National AIDS Policy (ONAP)
released a National HIV/AIDS Strategy (NHAS) for the United States
in July 2010. The primary goals of the NHAS are to: reduce HIV
incidence; increase access to care and optimize health outcomes;
and reduce HIV-related health disparities. Monitoring HIV Care in
the United States addresses existing gaps in the collection,
analysis, and integration of data on the care and treatment
experiences of PLWHA. This report identifies critical data and
indicators related to continuous HIV care and access to supportive
services, assesses the impact of the NHAS and the ACA on
improvements in HIV care, and identifies public and private data
systems that capture the data needed to estimate these indicators.
In addition, this report addresses a series of specific questions
related to the collection, analysis, and dissemination of such
data. Monitoring HIV Care in the United States is the first of two
reports to be prepared by this study. In a forthcoming report, also
requested by ONAP, the committee will address the broad question of
how to obtain national estimates that characterize the health care
of people living with HIV in the United States. The second report
will include discussion of challenges and best practices from
previous large scale and nationally representative studies of PLWHA
as well as other populations. Table of Contents Front Matter
Summary 1 Introduction 2 Indicators Related to Continuous HIV Care
and Access to Supportive Services 3 Sources of Data on HIV Care to
Assess Indicators of HIV Care and Access to Supportive Services 4
Barriers to the Collection of HIV Care Data 5 The Role of Health
Information Technology and Data System Integration in the
Collection of HIV Care Data 6 Efficient Analysis of HIV Care
Indicators and Dissemination of Data by Federal Agencies Appendix:
Biographical Sketches of Committee Members
General
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