This text contains a collection of papers presented at the 6th
World Congress on Down's Syndrome, held in Madrid in October 1997.
The papers focus on the scientific advances and therapeutic
practices that make it possible for people with Down's syndrome to
enjoy good health, to be recognized socially, to go to mainstream
school, to have a job, to integrate in their community and to enjoy
a better quality of life.
The papers aim to reflect the dynamism of the Down's syndrome
community at national and international levels, and the questions
and solutions envisaged in many parts of the world. They also
highlight the challenges for future concern. The most important and
urgent challenges discussed are: increased recognition of the
syndromic specificity of Down's syndrome; better knowledge of the
genetic mechanisms inducing Down's syndrome and of the individual
variation at the genetic and epigenetic level (particularly brain
development); more precise characterization of psychological,
educational and social development in Down's syndrome individuals;
continued improvement of medical care for the whole life cycle of
Down's syndrome individuals; better and specialized school
techniques and approaches for tracking literacy and computational
skills in Down's syndrome children and adolescents; more effective
ways of integrating Down syndrome individuals into society and
making them feel and be fully-fledged members of our social
structures; and adequate medical, psychological, and social care of
ageing Down's syndrome persons
General
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