Cancer on the Margins presents the findings of the Ontario
Breast Cancer Community Research Iniative, an organization created
to investigate the experiences of women with breast cancer from
marginalized and underrepresented groups. The authors examine the
psychosocial needs of women living with breast cancer, while
investigating differences in treatment, care, and survivorship
amongst Aboriginal women, women of colour, francophone women,
lesbians, as well as young women, lower-income women, and women in
rural areas.
Structured as a guide for similar research, Cancer on the
Margins provides a "start to finish" format that reveals the
complexities of doing such work at each stage of research,
beginning with the study design and ending with the dissemination
of results. The authors address the challenges of working with and
speaking for these groups of women, the tension between description
and interpretation, and the challenge for qualitative work to
present findings that positively influence the circumstances of
research participants. With a strong commitment to social justice,
this volume also shows how participatory research can lead to
social change, and indicates effective ways to ensure that research
not only reaches, but is also employed in, the communities it
intends to serve.
Bridging the gap between a wide range of audiences, this vitally
important work will be of interest to health professionals, new
researchers, policy makers, new researchers, and experienced
investigators, as well as the public.
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