Haemophilia in Aotearoa New Zealand - More Than A Bleeding Nuisance (Paperback)

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

General

Imprint:	Routledge
Country of origin:	United Kingdom
Series:	Routledge Studies in Health and Medical Anthropology
Release date:	September 2020
First published:	2019
Authors:	Julie Park • Deon York • Michael Carnahan • Kathryn Scott
Dimensions:	234 x 156 x 24mm (L x W x T)
Format:	Paperback
Pages:	238
ISBN-13:	978-0-367-66234-9
Categories:	Books > Medicine > Clinical & internal medicine > Haematology Books > Science & Mathematics > Biology, life sciences > Human biology & related topics > Medical anthropology
LSN:	0-367-66234-5
Barcode:	9780367662349

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