Both a memoir and a medical study, this unique work explores the
extensive and tragic reach of craniosynostosis, the premature
fusing of the cranial sutures in infants. The author - born with
craniosynostosis in 1975 - documents his and his family's
struggles, weaving his story into a broader view of this birth
defect. Included are interviews with respected craniofacial
surgeons, neurosurgeons and pediatric anesthesiologists, an
explanation of the major types of craniosynostosis, and a summary
of the modern medical history of cranial sutures, as well as
ancient treatments dating to the time of Hippocrates. The
experiences of 11 American families affected by craniosynostosis
are chronicled, demonstrating the uniqueness of each case and each
treatment. Their stories illustrate the surgical techniques now
being used to release cranial sutures, allowing the brain to grow
naturally - though not every story ends this way.
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