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Research Involving Participants with Cognitive Disability and Differences - Ethics, Autonomy, Inclusion, and Innovation (Hardcover)
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Research Involving Participants with Cognitive Disability and Differences - Ethics, Autonomy, Inclusion, and Innovation (Hardcover)
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Research participants who have cognitive disability and difference
may be considered a vulnerable population. At the same time, they
should also be empowered to participate in research in order to
foster the growth of knowledge and the improvement of practices
that concern them. Participating in such research follows the
Disability Rights Movement's call - "nothing about us without us."
This volume provides timely, multidisciplinary insights into the
ethical aspects of research that includes participants with
cognitive disability and difference. These include conditions such
as intellectual disability, autism, mild cognitive impairment
(MCI), and psychiatric diagnoses. The chapters in this volume
describe situations where difficulties arise, And explore
strategies for empowerment and inclusion. They draw on both
empirical and normative research to offer suggestions for research
design, research ethics, and best practices that empower people
with cognitive disabilities and differences to participate in
research while respecting and managing potential coercion or undue
influence. This interdisciplinary volume includes contributions
from scholars in anthropology, sociology, ethics, child studies,
health and rehabilitation sciences, philosophy, and law who address
these issues in both clinical and social/behavioral research. It
will be valuable for anyone conducting research involving these
populations in the clinical, humanistic, or social sciences.
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