The main research described in this book is concerned with
assessing the interrelationship of psychological adjustment,
compliance with medical advice and use of unorthodox treatments in
a sample of rheumatoid arthritic out-patients. Basically this
research is comprised of four components: two pilot studies; the
development and postal administration of an illness knowledge
assessment questionnaire; and a 'follow-up' correlational study.
pilot study 1, which involved interviews with 18 patients, was a
'question seeking' study - the aim being to develop research
questions of relevance to the Subject sample. The findings of this
study suggested that poor illness knowledge and consequent
misconceptions was contributing to psychological distress and
affecting health behaviour among patients. In pilot study 2 a
sample of 17 patients were questioned in detail - but using
open-ended questions - about their understanding of their condition
and treatment. The results of this study supported the impression
gained in pilot study 1, that patients were typically ill-informed
about their illness and tended, in the absence of correct
information, to overestimate "the risks associated with rheumatoid
arthritis and underestimate the value of treatments.
General
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