Planning for Long-Term Use of Biomedical Data - Proceedings of a Workshop (Paperback)

Biomedical research data sets are becoming larger and more complex, and computing capabilities are expanding to enable transformative scientific results. The National Institutes of Health's (NIH's) National Library of Medicine (NLM) has the unique role of ensuring that biomedical research data are findable, accessible, interoperable, and reusable in an ethical manner. Tools that forecast the costs of long-term data preservation could be useful as the cost to curate and manage these data in meaningful ways continues to increase, as could stewardship to assess and maintain data that have future value. The National Academies of Sciences, Engineering, and Medicine convened a workshop on July 11-12, 2019 to gather insight and information in order to develop and demonstrate a framework for forecasting long-term costs for preserving, archiving, and accessing biomedical data. Presenters and attendees discussed tools and practices that NLM could use to help researchers and funders better integrate risk management practices and considerations into data preservation, archiving, and accessing decisions; methods to encourage NIH-funded researchers to consider, update, and track lifetime data; and burdens on the academic researchers and industry staff to implement these tools, methods, and practices. This publication summarizes the presentations and discussion of the workshop. Table of Contents Front Matter 1 Introduction 2 Data Sharing and Data Preservation 3 Data Risks and Costs 4 Tools and Practices for Risk Management, Data Preservation, and Accessing Decisions 5 Lifetime Data Costs 6 Reflections and Next Steps References Appendixes Appendix A: Workshop Agenda Appendix B: Biographical Sketches of Committee Appendix C: Registered In-Person Workshop Participants

General

Imprint:	National Academies Press
Country of origin:	United States
Release date:	July 2020
First published:	2020
Authors:	National Academies of Sciences, Engineering, and Medicine • Policy and Global Affairs • Board on Research Data and Information • Division on Earth and Life Studies • Board on Life Sciences • Division on Engineering and Physical Sciences • Computer Science and Telecommunications Board • Committee on Applied and Theoretical Statistics • Board on Mathematical Sciences and Analytics
Editors:	Linda Casola
Dimensions:	229 x 152mm (L x W)
Format:	Paperback
Pages:	92
ISBN-13:	978-0-309-67275-7
Categories:	Books > Reference & Interdisciplinary > Library & information sciences > Library, archive & information management Books > Computing & IT > General theory of computing > General Books > Computing & IT > Computer communications & networking > Network security Books > Medicine > General issues > Medical equipment & techniques > General
LSN:	0-309-67275-9
Barcode:	9780309672757

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