Books > Medicine > Clinical & internal medicine > Paediatric medicine
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Comprehensive Cancer Care for Children and Their Families - Summary of a Joint Workshop by the Institute of Medicine and the American Cancer Society (Paperback)
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Comprehensive Cancer Care for Children and Their Families - Summary of a Joint Workshop by the Institute of Medicine and the American Cancer Society (Paperback)
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Childhood cancer is an area of oncology that has seen both
remarkable progress as well as substantial continuing challenges.
While survival rates for some pediatric cancers present a story of
success, for many types of pediatric cancers, little progress has
been made. Many cancer treatments are known to cause not only
significant acute side effects, but also lead to numerous long-term
health risks and reduced quality of life. Even in cases where the
cancer is considered curable, the consequences of treatment present
substantial long-term health and psychosocial concerns for
children, their families, their communities, and our health system.
To examine specific opportunities and suggestions for driving
optimal care delivery supporting survival with high quality of
life, the National Cancer Policy Forum of the Institute of Medicine
and the American Cancer Society co-hosted a workshop which convened
experts and members of the public on March 9 and 10, 2015. At this
workshop, clinicians and researchers in pediatric oncology,
palliative, and psychosocial care, along with representatives from
the U.S. Food and Drug Administration, National Cancer Institute,
Children's Oncology Group, pharmaceutical companies, and patient
advocacy organizations, discussed and developed a menu of options
for action to improve research, quality of care, and outcomes for
pediatric cancer patients and their families. In addition, parents
of children with cancer and pediatric cancer survivors shared their
experiences with care and provided poignant personal perspectives
on specific quality of life concerns and support needs for children
and families across the life spectrum. This report summarizes the
presentations and discussion of the workshop. Table of Contents
Front Matter WORKSHOP SUMMARY Appendix
General
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