One mother described part of the complications of consenting to her
one-week-old child's high-risk heart surgery. 'I can't imagine her
being any more precious to me than she is now. I can hardly bear
feeling so close to her as it is...I can't wait until I see her
again. It's worse than being in love.' Can emotional parents be
rational enough to give informed proxy consent? Research
observations and interviews with many parents and practitioners in
the wards, clinics and medical meetings in two London hospitals
show how parents' moral emotions of fear and hope are central to
their informed decision-making and voluntary consent. This record
from the 1980s offers useful historical comparisons with today's
paediatric cardiac services in both the remarkable progress over
nearly 40 years and the continuing concerns.
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