"An extraordinary story that you will pick up and finish in a few
hours of remarkable reading. The account of her son's and her
family's regeneration is simply inspiring. It will be instructive
to any family with a child with a disabling condition. But as the
account of a transfiguring experience and the sensitive
interpretation of how it came about, it speaks to all of
us."--Arthur Kleinman, Harvard Medical School, author of "Writing
at the Margin"
"Ruthann Johansen's loving account of the aftermath of her son's
traumatic brain injury is an extraordinary book, . . . at once a
profound meditation about the inextricable relationship between
language, story-telling, and self-formation and a moving account of
how one young man reconstructed his life in dialogue with the
solicitations and offerings of family, friends, and caring others.
This book should be read by everyone who is interested in the
nature of identity and selfhood."--Janice A. Radway, Duke
University, author of "A Feeling for Books: The Book-Of-The-Month
Club, Literary Taste, and Middle-Class Desire
"This book clearly asks the question: Who speaks for the
traumatically brain injured? It should be required reading for all
neuroscientists who are providers of care or who are diligently
conducting research to find a therapy that truly produces recovery
of function."--David A. Hovda, Professor of Neurosurgery and
Director of the Brain Injury Research Center, University of
California, Los Angeles
"A singular contribution to our understanding of brain injury as
illness experience, of the family dynamics of care, and of the
narrative nature of lives and brains. The writing is lyrical,
moving, and scholarly, not by turns butat the same time. Johansen
conveys mother love, feminist self-awareness, and a critical social
perspective to provide a unique account of family life through
continuing trauma."--Arthur W. Frank, author of "The Wounded
Storyteller: Body, Illness, and Ethics
"This book is gripping and inspired. . . . It will be of great
solace and usefulness to others who find themselves in such
circumstances, part of the literature of family disaster. It will
find an audience as well among all those concerned with what might
be called the construction of the self, which would include a good
many in various psychological fields."--F. Robert Rodman, author of
"Not Dying: A Memoir
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