Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic
disorder that causes blood vessel abnormalities in the nose, skin,
gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the
most common symptom of HHT, but abnormal vessels in other organs,
if they are not diagnosed and treated, can lead to serious medical
complications, including stroke, hemorrhage, anemia, and brain
abscess. Psychologist Sara Palmer, who has HHT herself and is an
expert in helping people cope with health conditions, draws on
current research as she thoroughly describes the symptoms of HHT,
explains how the diagnosis is made (and often missed), and details
treatment options. While addressing the medical aspects of HHT,
Palmer also reveals how people affected by the disorder can
maintain their emotional health, take care of family members, and
live life as fully as possible. Enriched with illustrations,
personal stories of people living with HHT, a glossary, and contact
information for the HHT Centers of Excellence (which provide
coordinated medical treatment for people with the disorder), Living
with HHT is a complete resource for individuals with HHT and their
families. This guide is also essential for health professionals
seeking more information about this underdiagnosed disease.
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