The story of one mother's fight against the medical
establishment to prove the link between infection-triggered PANDAS
and her son's sudden-onset OCD and Tourette syndrome.
The summer before entering sixth grade, Sammy, a bright and
charming boy who lived on the coast of Maine, suddenly began to
exhibit disturbing behavior. He walked and ate with his eyes shut,
refused to bathe, burst into fits of rage, slithered against walls,
and used his limbs instead of his hands to touch light switches,
doorknobs, and faucets.
Sammy's mother, Beth, already coping with the overwhelming
responsibility of raising three sons alone, watched helplessly as
her middle child descended into madness. Sammy was soon diagnosed
with obsessive-compulsive disorder (OCD) and later with Tourette
syndrome. Unwilling to accept the doctors' prognoses for lifelong
mental illness and repeated hospitalizations, Beth fought to
uncover what was causing this decline. Beth's quest took her to the
center of the medical community's raging debate about whether OCD
and Tourette syndrome can be caused by PANDAS (Pediatric Autoimmune
Neuropsychiatric Disorders Associated with Streptococcal
Infections). With the battle lines firmly drawn, Beth searched
until she found two cutting-edge doctors who answered that question
with a definitive yes. Together, they cured Sammy. Five years
later, he remains symptom free.
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