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Haemophilia in Aotearoa New Zealand - More Than A Bleeding Nuisance (Hardcover)
Loot Price: R3,888
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Haemophilia in Aotearoa New Zealand - More Than A Bleeding Nuisance (Hardcover)
Series: Routledge Studies in Health and Medical Anthropology
Expected to ship within 12 - 17 working days
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Haemophilia in Aotearoa New Zealand provides a richly detailed
analysis of the experience of the bleeding disorder of haemophilia
based on longterm ethnographic research. The chapters consider
experiences of diagnosis; how parents, children, and adults care
and integrate medical routines into family life; the creation of a
gendered haemophilia; the use and ethical dilemmas of new
technologies for treatment, testing and reproduction; and how
individuals and the haemophilia community experienced the infected
blood tragedy and its aftermath, which included extended and
ultimately successful political struggles with the neoliberalising
state. The authors reveal a complex interplay of cultural values
and present a close-up view of the effects of health system reforms
on lives and communities. While the book focuses on the local
biology of haemophilia in Aotearoa New Zealand, the analysis allows
for comparison with haemophilia elsewhere and with other chronic
and genetic conditions.
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