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Unlocking Erik - A Freedom Journey to Restore the Speech of Those with Locked-In Syndrome (Paperback)
Loot Price: R1,760
Discovery Miles 17 600
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Unlocking Erik - A Freedom Journey to Restore the Speech of Those with Locked-In Syndrome (Paperback)
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This book depicts the trials and tribulations when trying to
restore speech to Erik who was locked-in (paralyzed and mute) at
age 16. We implanted electrodes into his brain, initiating a decade
of breakthrough research in speech recovery. It lead to the
author's own brain implant and the consequent successful offline
development of the speech prosthetic whereby mute, locked-in people
can speak. Part 1 is Erik's story of how he became locked-in
following a brainstem stroke, and our efforts to break him out of
his locked-in state by helping him speak. It describes my decision
making, the tremendous contribution of his family, their anguish
and the very relevant comparison with famous locked-in people,
namely, Stephen Hawking and Jean-Dominique Bauby (The Diving Bell
and the Butterfly). Part 2 documents conversations between myself
and Erik's Dad, Eddie. Eddie describes how he was trained in a
rehabilitation hospital to take care of his son. His 16-year
devotion to his son is unparalleled and heroic. This part also
contains important contributions from other researchers in the
field, in a question and answer format. Part 3 is a condensed
version of the scientific aspects of this research written for the
non-scientist. Figures and videos on the website augment the text.
Importantly, there is a full documentary associated with this book.
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