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Rare Diseases in the Age of Health 2.0 (Hardcover, 2014 ed.)
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Rare Diseases in the Age of Health 2.0 (Hardcover, 2014 ed.)
Series: Communications in Medical and Care Compunetics, 4
Expected to ship within 12 - 17 working days
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This text focuses on various factors associated with orphan
diseases and the influence and role of health information
technologies. Orphan diseases have not been adopted by the
pharmaceutical industry because they provide little financial
incentive to treat or prevent it. It is estimated that 6,000-7,000
orphan diseases exist today; as medical knowledge continues to
expand, this number is likely to become much greater. The book
highlights the opportunities and challenges in this increasingly
important area. The book explores new avenues which are opened by
information technologies and Health 2.0, and highlights also
economic opportunities of orphan disease medicine. The editors of
this new book have international experience and competencies in the
key areas of patient empowerment, healthcare and clinical knowledge
management, healthcare inequalities and disparities, rare diseases
and patient advocacy.
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