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Sickle Cell and the Social Sciences - Health, Racism and Disablement (Paperback)
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Sickle Cell and the Social Sciences - Health, Racism and Disablement (Paperback)
Series: Routledge Studies in the Sociology of Health and Illness
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Sickle cell disease (SCD) is a severe chronic illness and one of
the world's most common genetic conditions, with 400,000 children
born annually with the disorder, mainly in Sub-Saharan Africa,
India, Brazil, the Middle East and in diasporic African populations
in North America and Europe. Biomedical treatments for SCD are
increasingly available to the world's affluent populations, while
such medical care is available only in attenuated forms in Africa,
India and to socio-economically disadvantaged groups in North
America and Europe. Often a condition rendered invisible in policy
terms because of its problematic association with politically
marginalized groups, the social study of sickle cell has been
neglected. This illuminating volume explores the challenges and
possibilities for developing a social view of sickle cell, and for
improving the quality of lives of those living with SCD. Tackling
the controversial role of screening and genetics in SCD, the book
offers a brief thematic history of approaches to the condition,
queries the role of ethnicity and includes a discussion of how the
social model of disability can be applied, as well as featuring
chapters focusing on athletics, prisons and schools. Bringing
together a wide range of original research conducted in the USA,
the UK, Ghana and Nigeria, Sickle Cell and the Social Sciences is
anchored in the discipline of sociology, but draws upon a diverse
range of fields, including public health, anthropology, social
policy and disability studies.
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