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Books > Medicine > General issues > Medical ethics
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Saving Babies? (Paperback)
Loot Price: R745
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Saving Babies? (Paperback)
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It has been close to six decades since Watson and Crick discovered
the structure of DNA and more than ten years since the human genome
was decoded. Today, through the collection and analysis of a small
blood sample, every baby born in the United States is screened for
more than fifty genetic disorders. Though the early detection of
these abnormalities can potentially save lives, the test also has a
high percentage of false positives-inaccurate results that can take
a brutal emotional toll on parents before they are corrected. Now
some doctors are questioning whether the benefits of these
screenings outweigh the stress and pain they sometimes produce. In
Saving Babies?, Stefan Timmermans and Mara Buchbinder evaluate the
consequences and benefits of state-mandated newborn screening - and
the larger policy questions they raise about the inherent
inequalities in American medical care that limit the effectiveness
of this potentially life - saving technology. Drawing on
observations and interviews with families, doctors, and policy
actors, Timmermans and Buchbinder have given us the first
ethnographic study of how parents and geneticists resolve the many
uncertainties in screening newborns. Ideal for scholars of
medicine, public health, and public policy, this book is destined
to become a classic in its field.
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