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Alone in My Universe - Struggling with an Orphan Disease in an Unsympathetic World (Hardcover)
Loot Price: R856
Discovery Miles 8 560
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Alone in My Universe - Struggling with an Orphan Disease in an Unsympathetic World (Hardcover)
Expected to ship within 12 - 17 working days
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Donate to Against Period Poverty
Total price: R876
Discovery Miles: 8 760
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Battling a chronic disease can often be a lonely and frustrating
ordeal. It doesn't have to be. "Alone in My Universe, " compiled by
Wayne Brown, presents a series of writings from patients suffering
from acromegaly. Based on actual personal experiences, these
narratives provide a primer of understanding for others dealing
with this chronic, debilitating disease that affects many of the
body's systems.This collaborative effort, written by real people
touched by acromegaly, attempts to raise awareness of this
low-profile disease. Each patient tells his or her story as it
relates to the disease and its complications. Topics include the
following: Handling pre-diagnosis frustration Dealing with fears of
medical treatment and surgery Managing family issues and work
issues Talking with children Managing negative energy Coping with
good and bad days Living life each dayWith sympathy, empathy, and
mutual support, "Alone in the Universe" shares the heartfelt
stories of those suffering from acromegaly to show others that they
are not alone in their battle.
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