Series Information:
Reflective Bioethics

The world's food production is undergoing a rapid and revolutionary transformation, but little is known about it and less is being done to question the wisdom of it. Within a very few years, much of what we eat will have been genetically engineered, without proper consideration of the issues of public health, consumer choice and ecological stability. Against the Grain argues that the consequences of this huge experiment could be catastrophic, and at the very least have been underestimated or ignored by the industries exploiting the new technologies. The authors have unearthed government and industry documents which show these new methods to be far from fail-safe or risk free. Comprehensively supported with facts and references, the book provides a full account of the science and technologies involved in producing 'transgenic plants'. It also explains the scale and speed of what is going on, and argues for full public accountability and control of new developments - before it is too late.

This title was first published in 2003: As new medical technologies and treatments develop with increasing momentum, the legal and ethical implications of research involving human participants are being called into question as never before. Human Experimentation and Research explores the philosophical foundations of research ethics, ongoing regulatory dilemmas, and future challenges raised by the rapid globalisation and corporatisation of the research endeavour. This volume brings together some of the most significant published essays in the field. The editors also provide an informative introduction, summarizing the area and the relevance of the articles chosen.

Few issues have aroused so much public attention and controversy as recent developments in biotechnology. How can we make sound judgements of the cloning of Dolly the sheep, genetically altered foodstuffs, or the prospect of transplanting pigs' hearts into humans? Are we 'playing God' with nature? What is driving these developments, and how can they be made more accountable to the public? Engineering Genesis provides a uniquely informed, balanced and varied insight into these and many other key issues from a working group of distinguished experts - in genetics, agriculture, animal welfare, ethics, theology, sociology and risk - brought together by the Society, Religion and Technology Project of the Church of Scotland. A number of case studies present all the main innovations: animal cloning, pharmaceutical production from animals, cross-species transplants, and, genetically modified foods. From these the authors develop a careful analysis of the ethical and social implications - offering contrasting perspectives and insightful arguments which, above all, will enable readers to form their own judgements on these vital questions.

A Philosophical Disease extends the bondaries of bioethics discourse both in terms f philosophical argumentation and in the range of clinical material that informs the work. The book contains a series of essays, some previouslypublished, some not. A series of unifying themes run through the chapters, linking together the diverse studies into a connected whole. Elliot cobers such topics as deaf culture. hermaphrodites, personality disorders, and heart transplants. Elliot often turns to literature as a source of explication, examing work by Paul Auster, H.G.Wells, Graham Green and others.

The title of this book derives from C. Wright Mills' classic The Sociological Imagination (Penguin, 1970), in which he sees the essential project of social science as the use of the imagination to 'grasp history and biography and the relations between the two in society'. This enables the social scientist to 'range from the most impersonal and remote transformations to the most intimate features of the human self'. Another of Mills' concerns was the relationship between 'the personal troubles of the milieu' and 'the public issues of social structure' and these are most acutely illustrated in human genetics, the most personal of the new technologies. The chapters in this volume address these issues through discussions of choice and informed decision-making, risks and hazards, the economic and political organization of new technology, and the public as well as the scientist's understanding of science. The methods used range from detailed ethnographies, through deconstruction's of text and action, to surveys and interviews.

Drawing on the work of Ludwig Wittgenstein and novelists such as Walker Percy, Paul Auster and Graham Greene, "A Philosophical Disease" brings to the bioethical discussion larger philosophical questions about the sense and significance of human life.
Carl Elliott moves beyond the standard menu of bioethical issues to explore the relationship of illness to identity, and of mental illness to spiritual illness. He also examines the treatment of children born with ambiguous genitalia, the claims of Deaf culture, and the morality of self-sacrifice. This book focuses on a different sensibility in bioethics; how we use concepts, and how they relate to our own particular social institutions.

Few issues have aroused so much public attention and controversy as recent developments in biotechnology. How can we make sound judgements of the cloning of Dolly the sheep, genetically altered foodstuffs, or the prospect of transplanting pigs' hearts into humans? Are we 'playing God' with nature? What is driving these developments, and how can they be made more accountable to the public? Engineering Genesis provides a uniquely informed, balanced and varied insight into these and many other key issues from a working group of distinguished experts - in genetics, agriculture, animal welfare, ethics, theology, sociology and risk - brought together by the Society, Religion and Technology Project of the Church of Scotland. A number of case studies present all the main innovations: animal cloning, pharmaceutical production from animals, cross-species transplants, and, genetically modified foods. From these the authors develop a careful analysis of the ethical and social implications - offering contrasting perspectives and insightful arguments which, above all, will enable readers to form their own judgements on these vital questions.

Narratives have always played a prominent role in both bioethics and medicine; the fields have attracted much storytelling, ranging from great literature to humbler stories of sickness and personal histories. And all bioethicists work with cases--from court cases that shape policy matters to case studies that chronicle sickness. But how useful are these various narratives for sorting out moral matters? What kind of ethical work can stories do--and what are the limits to this work? The new essays in "Stories and Their Limits" offer insightful reflections on the relationship between narratives and ethics.

Bonnie Steinbock presents The Oxford Handbook of Bioethics - an authoritative, state-of-the-art guide to current issues in bioethics.
Thirty-four contributors reflect the interdisciplinarity that is characteristic of bioethics, and its increasingly international character. Thirty topics are covered in original essays written by some of the world's leading figures in the field, as well as by some newer 'up-and-comers'. The essays address both perennial issues, such as the methodology of bioethics, autonomy, justice, death, and moral status, and newer issues, such as biobanking, stem cell research, cloning, pharmacogenomics, and bioterrorism. Other topics concern mental illness and moral agency, the rule of double effect, justice and the elderly, the definition of death, organ transplantation, feminist approaches to commodification of the body, life extension, advance directives, physician-assisted death, abortion, genetic research, population screening, enhancement, research ethics, and the implications of public and global health for bioethics.
Anyone who wants to know how the central debates in bioethics have developed in recent years, and where the debates are going, will want to consult this book. It will be an invaluable resource not only for scholars and graduate students in bioethics, but also for those in philosophy, medicine, law, theology, social science, public policy, and public health who wish to keep abreast of developments in bioethics.

Series Information:
Reflective Bioethics

Published in 2004, this collection will encourage and foster informed discussion of key issues as society comes to grips with the implications of genetic engineering, the mapping and sequencing of the human genome, and the advent of the post-genomic era. The contributors are prominent social scientists, health specialists, journalists, bioethicists and commercial representatives from the UK, Finland, Germany, Holland and Norway who are at the leading edge of current research. the book will therefore appeal to the interested public, health and other professionals, teachers and students. This book was originally published as part of the Cardiff Papers in Qualitative Research series edited by Paul Atkinson, Sara Delamont and Amanda Coffey. The series publishes original sociological research that reflects the tradition of qualitative and ethnographic inquiry developed at Cardiff. The series includes monographs reporting on empirical research, edited collections focussing on particular themes, and texts discussing methodological developments and issues.

The Routledge Companion to Bioethics is a comprehensive reference guide to a wide range of contemporary concerns in bioethics. The volume orients the reader in a changing landscape shaped by globalization, health disparities, and rapidly advancing technologies. Bioethics has begun a turn toward a systematic concern with social justice, population health, and public policy. While also covering more traditional topics, this volume fully captures this recent shift and foreshadows the resulting developments in bioethics. It highlights emerging issues such as climate change, transgender, and medical tourism, and re-examines enduring topics, such as autonomy, end-of-life care, and resource allocation.

This book illustrates the significance of biomedical engineering in modern healthcare systems. Biomedical engineering plays an important role in a range of areas, from diagnosis and analysis to treatment and recovery and has entered the public consciousness through the proliferation of implantable medical devices, such as pacemakers and artificial hips, as well as the more futuristic technologies such as stem cell engineering and 3-D printing of biological organs. Starting with an introduction to biomedical engineering, the book then discusses various tools and techniques for medical diagnostics and treatment and recent advances. It also provides comprehensive and integrated information on rehabilitation engineering, including the design of artificial body parts, and the underlying principles, and standards. It also presents a conceptual framework to clarify the relationship between ethical policies in medical practice and philosophical moral reasoning. Lastly, the book highlights a number of challenges associated with modern healthcare technologies.

This book addresses the complexity of talking about normativity in bioethics within the context of contemporary multicultural and multi-religious society. It offers original contributions by specialists in bioethics exploring new ways of understanding normativity in bioethics. In bioethical publications and debates, the concept of normativity is often used without consideration of the difficulties surrounding it, whereas there are many competing claims for normativity within bioethics. Examples of such competing normative bioethical discourses can be perceived in variations and differences in bioethical arguments within individual religions, and the opposition between bioethical arguments from specific religions and arguments from bioethicists who do not claim religious allegiance. We also cannot merely assume that a Western understanding of normative bioethics will be unproblematic in bioethics in non-Western cultures and religions. Through an analysis of normativity in Christian, Hindu, Buddhist, Islamic, and Jewish bioethics, the book creates awareness of the complexity of normativity in bioethics. The book also covers normative bioethics outside an explicitly religiously committed context, and specific attention is paid to bioethics as an interdisciplinary endeavor. It reveals how normativity relates to empirical and global bioethics, which challenges it faces in bioethics in secular pluralistic society, and how to overcome these. By doing that, this book fills an important gap in bioethics literature.

The essays collected in this volume provide students of ethics with essential tools for making sense of emerging biotechnical capacities and the turbulent power relations these capacities are bringing into the world. Unlike previous reference works in bioethics, which focus on specific domains of human activity (such as genetic research or biomedicine), this volume directs students' attention to the underlying cultural and institutional forces that shape how biotechnologists approach the world, and teaches students how to weigh the ethical significance of these forces. This innovative approach to the ethics of biotechnology, detailed in the volume's introduction, equips students to track the dynamic interplay of biology, digital technology and the high-tech economy which is remaking the living world today and the human relation to it.

This book provides a comprehensive overview of the basic and advanced metabolic engineering technologies used to generate natural metabolites and industrially important biomolecules. Metabolic engineering has the potential to produce large quantities of valuable biomolecules in a renewable and sustainable manner by extending or modifying biosynthetic pathways in a wide range of organisms. It has been successfully used to produce chemicals, drugs, enzymes, amino acids, antibiotics, biofuels, and industrially important pharmaceuticals. The book comprehensively reviews the various metabolites detection, extraction and biosensors and the metabolic engineering of microbial strains for the production of industrially useful enzymes, proteins, organic acids, vitamins and antibiotics, therapeutics, chemicals, and biofuels. It also discusses various genetic engineering and synthetic biology tools for metabolic engineering. In closing, the book discusses ethical, patenting and regulatory issues in the metabolic engineering of microbes. This book is a valuable source not only for beginners in metabolic engineering, but also students, researchers, biotechnology and metabolic engineering based company.

This book examines the question of what parental obligations procreators incur by bringing children into being. Prusak argues that parents, as procreators, have obligations regarding future children that constrain the liberty of would-be parents to do as they wish. Moreover, these obligations go beyond simply respecting a child's rights. He addresses in turn the ethics of adoption, child support, gamete donation, surrogacy, prenatal genetic enhancement, and public responsibility for children.

This book offers new essays exploring concepts and applications of nonideal theory in bioethics. Nonideal theory refers to an analytic approach to moral and political philosophy (especially in relation to justice), according to which we should not assume that there will be perfect compliance with principles, that there will be favorable circumstances for just institutions and right action, or that reasoners are capable of being impartial. Nonideal theory takes the world as it actually is, in all of its imperfections. Bioethicists have called for greater attention to how nonideal theory can serve as a guide in the messy realities they face daily. Although many bioethicists implicitly assume nonideal theory in their work, there is the need for more explicit engagement with this theoretical outlook. A nonideal approach to bioethics would start by examining the sociopolitical realities of healthcare and the embeddedness of moral actors in those realities. How are bioethicists to navigate systemic injustices when completing research, giving guidance for patient care, and contributing to medical and public health policies? When there are no good options and when moral agents are enmeshed in their sociopolitical viewpoints, how should moral theorizing proceed? What do bioethical issues and principles look like from the perspective of historically marginalized persons? These are just a few of the questions that motivate nonideal theory within bioethics. This book begins in Part I with an overview of the foundational tenets of nonideal theory, what nonideal theory can offer bioethics, and why it may be preferable to ideal theory in addressing moral dilemmas in the clinic and beyond. In Part II, authors discuss applications of nonideal theory in many areas of bioethics, including reflections on environmental harms, racism and minority health, healthcare injustices during incarceration and detention, and other vulnerabilities experienced by patients from clinical and public health perspectives. The chapters within each section demonstrate the breadth in scope that nonideal theory encompasses, bringing together diverse theorists and approaches into one collection.

Bioscience ethics facilitates free and accurate information transfer from applied science to applied bioethics. Its major elements are: increased understanding of biological systems, responsible use of technology, and attuning ethnocentric debates to new scientific insights. Pioneered by Irina Pollard in 1994, bioscience ethics has become an internationally recognized discipline, interfacing science and bioethics within professional perspectives such as medical, legal, bio-engineering, and economics. Written for students and professionals alike, the fundamental feature of this book is its breadth, important because bioscience ethics interweaves many diverse subjects in the process of gathering specialist scientific knowledge for bioethical review. It contains chapters which embrace topics affecting human reproduction, end-of-life care and euthanasia, challenge human-dominated ecosystems, and review population growth, economic activity and warfare. A background section describes the evolution of ethical consciousness, explores the future, and proposes that the reworking of ethical boundaries can enhance mature decision-making in harmony with changing technology.

This book takes as its point of departure a humble cell lying on the intersection of ideas as diverse and yet interlaced as life, knowledge, commerce, governance, and ethics. It seeks to deepen the understanding of stem cell entities and the concerns, hopes, and aspirations that shape and make them viable therapeutic entities in the context of rapid globalization. Several key intersections between individual, group, and institutional relationships have become central to locating and debating the production of stem cells today. This edited collection addresses three overarching concerns: regenerating the notion of ethics, the emerging therapeutic horizons, and the position of the patient. As a whole this book seeks to explain how stem cells are accommodated, contested, and used in contemporary India and around the globe through an informed unpacking of issues underpinning contestation and promotion bestriding these technological developments. The authors offer a truly multi-disciplinary perspective, stimulating conversation between the social sciences, biological sciences and the patient. The concerns expressed and highlighted by these conversations are embedded in a vast geo-political expanse stretching from India to Euro-America and will be of great interest to academics and practitioners across fields including science technology studies, medicine and international development.

This book takes readers on a journey through the wide universe of bioethics, raising the following question: what is the proper attitude towards health, life, and death from the perspective of contemporary behavioral economics? Drawing on fields as diverse as economics, ethics, ecology, biology, and philosophy, this book seeks to uncover the bioethics we accomplish, not the moral principles that we advocate. This book covers life-and-death issues arranged around five themes: selves, persons, populations, species, and "Future Earth". Ultimately, the author illustrates two kinds of justice: static and dynamic. Static justice prevails whenever parties are free to bargain with each other, while dynamic justice follows from parties' interactions over time. An examination into these types of justice reveals one particularly striking phenomenon: attempts by others to tip the balance of justice have a tendency to backfire. Of primary interest to behavioral economists, this book will also appeal to scholars studying bioethics, ecology, medicine, and philosophy, as well as all people dealing with issues of health, dying, and death.

This book engages in a critical discussion on how to respect and promote patients' autonomy in difficult cases such as palliative care and end-of-life decisions. These cases pose specific epistemic, normative, and practical problems, and the book elucidates the connection between the practical implications of the theoretical debate on respecting autonomy, on the one hand, and specific questions and challenges that arise in medical practice, on the other hand. Given that the idea of personal autonomy includes the notion of authenticity as one of its core components, the book explicitly includes discussions on underlying theories of the self. In doing so, it brings together original contributions and novel insights for "applied" scenarios based on interdisciplinary collaboration between German and Serbian scholars from philosophy, sociology, and law. It is of benefit to anyone cherishing autonomy in medical ethics and medical practice.

This book fills an important gap in existing health care ethics literature by describing an egalitarian conception of moral respect which applies to autonomous and non-autonomous patients alike. It reframes questions about respect, from its target to the role that respect plays in our moral lives. Taking into account various forms of objectification, it suggests that the unique role of moral respect is to recognize a person as more than a mere object; to recognize them as an equally intrinsically valuable being who possesses dignity. Further, the book argues that respect is central to health care because medicine and experiences of illness are both inherently objectifying. Objectification is sometimes morally permissible, and other times morally troubling-a context of respect can help to distinguish between these situations. Because we can reduce others to mere objects in ways other than violating or denying their autonomy, the approach presented here can also accommodate non-autonomous patients directly without considering them as marginal cases.