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The Invisible Smile - Living without facial expression (Hardcover, New)
Loot Price: R2,523
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The Invisible Smile - Living without facial expression (Hardcover, New)
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We are defined by our faces. They give identity, but, equally
important, reveal our moods and emotions through facial expression.
So what happens when the face cannot move? This book is about
people who live with Mobius Syndrome, which has as its main feature
an absence of movement of the muscles of facial expression from
birth.
People with Mobius cannot smile, frown, or look surprised or sad.
Talking and eating are problematic, since their lips do not move.
Even looking around is also difficult since the eyes cannot move
either. The book is unique in giving those with Mobius a voice,
allowing children and adults with the condition to explain what it
is like. These fascinating biographies reveal much about the
relation between face and facial expression, and emotional
expression and emotional experience which we normally take for
granted. The narratives also show the creative ways in which those
with Mobius construct their lives and how they come to terms with
and express their identities with, and yet, beyond their faces.
Some with Mobius have been thought to have learning difficulties
and autism, since an impassive immobile face has been assumed to
reflect inner cognitive problems. This book criticizes such work
and asks people to look not only at the face but beyond it to see
the person.
Throughout the book, several themes emerge, of which perhaps the
most surprising is the reduced emotional experience those with
Mobius can have as children and young adults and the journeys they
go on as they realize this and then assimilate emotion from the
outside in.
The result of a 4 year collaboration between a
clinician/neuroscientist and a teacher/lobbyist who lives with
Mobius, The Invisible Smile provides an authentic, personal and
moving account of this disorder.
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