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Breathe, Baby, Breathe! - Neonatal Intensive Care, Prematurity, and Complicated Pregnancies (Paperback)
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Breathe, Baby, Breathe! - Neonatal Intensive Care, Prematurity, and Complicated Pregnancies (Paperback)
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Every year in the United States, 12 per cent of all births are
preterm births, 5 per cent of all babies need help to breathe at
birth, and 3 per cent of neonates are born with at least one severe
malformation. Many of these babies are hospitalized in a neonatal
intensive care unit. Annie Janvier and her husband, Keith
Barrington, are both pediatricians who specialize in the care of
these sick babies and are internationally known for their research
in this area. In 2005, when their daughter Violette was born
extremely prematurely, four months before her due date, they faced
the situation "from the other side" as parents. Despite knowing the
scientific facts, they knew nothing about the experience itself.
"Knowing how a respirator works did not help me be the mother of a
baby on a respirator," writes Annie. She did not know how to
navigate the guilt, the uncertainty, the fears, the predictions of
providers, and the responses of friends and family. In a society
obsessed with goals, performance, efficiency, and high percentages,
she discovered that the daily lack of control that new parents of
sick babies face changes their lives. And that, for physician
parents, it also changes the way they practice medicine. Most of
the articles and books written about premature babies and neonatal
intensive care units examine the technological and medical aspects
of neonatology. Breathe, Baby, Breathe!, however, is written in the
voice of a parent-doctor and tells the story of Violette and her
parents, alongside the stories of other fragile babies and their
families with different journeys and different outcomes. With the
story of Violette at the core of the book, the interwoven stories
and empirical articles provide essential insights into the medical
world of premature birth. This original and clever blend of
narrative and evidence provides a new, experiential view of the way
forward during a parental crisis.
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