Never before have the scope and limits of scientific freedom been more important or more under attack. New science, from artificial intelligence to gene editing, creates unique opportunities for making the world a better place. It also presents unprecedented dangers. This book is about the opportunities and challenges - moral, regulatory and existential - that face both science and society. How are scientific developments impacting on human life and on the structure of societies? How is science regulated and how should it be regulated? Are there ethical boundaries to scientific developments in sensitive areas? Such are the questions that the book seeks to answer. Both the survival of humankind and the continued existence of our planet are at stake. -- .

The Universal Declaration on Bioethics and Human Rights, 2005, marked a significant step towards the recognition of universal standards in the field of science and medicine. This book provides an overview of the ethical and legal developments which have occurred in the field of bioethics and human rights since then. The work critically analyzes the Declaration from an ethical and legal perspective, commenting on its implementation, and discussing the role of non-binding norms in international bioethics. The authors examine whether the Declaration has contributed to the understanding of universal or global bioethics, and to what degree states have implemented the principles in their domestic legislation. The volume explores the currency of the Declaration vis-a-vis the more recent developments in technology and medicine and looks ahead to envisage the major bioethical challenges of the next twenty years. In this context, the book offers a comprehensive ethical and legal study of the Declaration with an in-depth analysis of the meaning of the provisions, in order to clarify the extension of human rights in the field of medicine and the obligations incumbent upon UNESCO member States, with reference to their implementation practice.

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics."
This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning.
Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

What will it mean for society if science enables us to choose a future child whose health, athletic ability or intelligence is predetermined? This future is becoming ever more likely with the latest developments in human reproduction -- but concerns are growing about the implications. New procedures making possible heritable genetic modifications such as genome editing open the door to 'sanitized' selective eugenics; but these practices have some unnerving similarities to the discredited eugenic programmes of early twentieth-century regimes. A Christian perspective based on Scripture gives us the resources we urgently need to evaluate both current and future selection practices. Calum MacKellar offers an accessible, inter-disciplinary analysis, blending science, history and Christian theology. This book will enable you to become fully informed about the new scientific developments in human reproduction - developments that will affect us all.

This book discusses the ethical and legal challenges related to innovations, with reference to both scientific research and emerging technologies. It analyzes scientific research with specific reference to experimentation, with a focus on vulnerable people (minors, women, people in developing countries), compassionate care, biobanks and ethical committees. In the context of emerging technologies, it examines the ethical and legal aspects of neuroscience, genomics, ICT, big data, biometrics, converging technologies, enhancement and robotics. The book provides conceptual tools and categories to help readers understand and acquire a critical awareness of the current debates in the field.

This book serves as an introduction to the concepts of medical biotechnology, with great details about fundamentals and early disciplines of study as well as emerging fields and the latest research. The book follows a chronological order from the earliest discoveries and breakthroughs of medical biotechnology to the latest areas of study. The book contains up-to-date citations for each chapter and section, which makes it easy for the reader to understand the concept and also to follow the latest developments in the particular area. It is an ideal book for undergraduate and graduate students who aspire to derive basic knowledge and are also keen on learning about the latest advancements in the field of medical biotechnology.

Our technological culture has an extremely dynamic character: old ways of reproducing ourselves, managing nature and keeping animals are continually replaced by new ones; norms and values with respect to our bodies, food production, health care and environmental protection are regularly being put up for discussion. This constantly confronts us with new moral problems and dilemmas. In discussion with other approaches this book argues that pragmatism, with its strong emphasis on the interaction between technology and values, gives us both procedural help and stresses the importance of living and cooperating together in tackling these problems and dilemmas. The issues in this book include the interaction of technology and ethics, the status of pragmatism, the concept of practice, and discourse ethics and deliberative democracy. It has an interactive design, with original contributions alternating with critical comments. The book is of interest for students, scholars and policymakers in the fields of bioethics, animal ethics, environmental ethics, pragmatist philosophy and science and technology studies.

This book addresses the question of animal rights in the context of literary criticism. Working from a committed position, it asks the question, 'What would literary studies look like if we took animal rights seriously?' It offers critical surveys of the main themes in the history of animal rights and some of the more important contemporary positions together with readings of a wide range of literary texts from classical antiquity to the present day.

Modern medicine has produced many wonderful technological breakthroughs that have extended the limits of the frail human body. However, much of the focus of this medical research has been on the physical, often reducing the human being to a biological machine to be examined, understood, and controlled. This book begins by asking whether the modern medical milieu has overly objectified the body, unwittingly or not, and whether current studies in bioethics are up to the task of restoring a fuller understanding of the human person. In response, various authors here suggest that a more theological/religious approach would be helpful, or perhaps even necessary. Presenting specific perspectives from Judaism, Christianity and Islam, the book is divided into three parts: "Understanding the Body," "Respecting the Body," and "The Body at the End of Life." A panel of expert contributors-including philosophers, physicians, and theologians and scholars of religion- answer key questions such as: What is the relationship between body and soul? What are our obligations toward human bodies? How should medicine respond to suffering and death? The resulting text is an interdisciplinary treatise on how medicine can best function in our societies. Offering a new way to approach the medical humanities, this book will be of keen interest to any scholars with an interest in contemporary religious perspectives on medicine and the body.

In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.

"Globalizing Feminist Bioethics" is a collection of new essays on the topic of international bioethics that developed out of the Third World Congress of the International Association of Bioethics in 1996. Rosemarie Tong is the primary editor of this collection, in which she, Gwen Anderson, and Aida Santos look at such international issues as female genital cutting, fatal daughter syndrome, use of reproductive technologies, male responsibility, pediatrics, breast cancer, pregnancy, and drug testing.

Human Lives: Critical Essays on Consequentialist Bioethics is a collection of original papers by philosophers from Britain, the USA and Australia. The aim of the book is to redress the imbalance in moral philosophy created by the dominance of consequentialism, the view that the criterion of morality is the maximization of good effects over bad, without regard for basic right or wrong. This approach has become the orthodoxy over the last few decades, particularly in the field of bioethics, where moral theory is applied to matters of life and death. The essays in Human Lives critically examine the assumptions and arguments of consequentialism, reviving in the process important concepts such as rights, justice, innocence, natural integrity, flourishing, the virtues, and the fundamental value of human life.

For decades, the field of bioethics has shaped the way we think about ethical problems in science, technology, and medicine. But its traditional emphasis on individual interests such as doctor-patient relationships, informed consent, and personal autonomy is minimally helpful in confronting the social and political challenges posed by new human biotechnologies such as assisted reproduction, human genetic modification, and DNA forensics. Beyond Bioethics addresses these provocative issues from an emerging standpoint that is attentive to race, gender, class, disability, privacy, and notions of democracy-a "new biopolitics." This authoritative volume provides an overview for those grappling with the profound dilemmas posed by these developments. It brings together the work of cutting-edge thinkers from diverse fields of study and public engagement, all of them committed to this new perspective grounded in social justice and public interest values.

'Clinical epidemiology' is now widely promoted and taught as a 'basic science' of Evidence-Based Medicine, of clinical EBM to be specific. This book, however, is mostly about that which Miettinen takes to be the necessary substitute for this now-so-fashionable subject - namely, Theory of Clinical Medicine together with its subordinate Theory of Clinical Research. The leit motif in all of this is Miettinen's perception of the need, and opportunity, to bring major improvements into clinical medicine in this Information Age, now that theoretical progress has made feasible the development of practice-guiding Expert Systems for it. Parts of this text constitute essential reading for whoever is expected, or otherwise inclined, to study - or teach - 'clinical epidemiology,' and the same is true of those who set policy for the education of future clinicians; but practically all of it is essential reading for future - and current - academics in the various disciplines of clinical medicine. After all, the text is the result of a concentrated effort, over a half-century no less, to really understand both clinical and community medicine and the research to advance the knowledge-base of these. Research epidemiologists, too, will find this text interesting and instructive.

Over the last decade, technical advances have allowed genomic testing which provides a great opportunity for diagnosis but also an increased chance of uncertain or unexpected findings. This book addresses many of the questions that arise in this context and summarizes the essential concepts in diagnostic genetic testing in an easy-to-read manner. It also covers some broad context for the practical and ethical implications of examining human DNA sequences. The book starts with a general introduction to the field, providing enough background to allow readers without any previous education in genetics to comprehend the material in the subsequent chapters. The main part explores differing aspects of human genetics and the wider implications of testing in these areas. The author covers not only single gene inheritance, but also genetic testing of cancers and how testing benefits the patients. Special emphasis is also given to the questions of genetics and identity. The concluding part then draws the main themes together and summarises the wider significance of genetics. It also explores the gap between promises made for the impact of advances in genetics, and the actual benefits to patients. The book is written for everyone interested to learn about the process of genetic testing and the broader implications. Moreover, it is aimed at health professionals with an interest in genetics, at students or scientific trainees looking for an introduction to diagnostic genetics, and at professionals in health policy or health journalism.

The questions and dilemmas of bioethics touch everyone. Should people who refuse to be vaccinated be treated for COVID-19, even if that displaces vaccinated patients with other serious conditions? What restrictions on abortion should there be, if any? Should women be paid to donate eggs? Bioethics: What Everyone Needs to Know (R) discusses these and other similar questions facing the public today-as well as providing a way for thinking deeply about them. Steinbock and Menzel first examine major moral theories and how they can be used to analyze bioethical issues. They then provide historical background to the birth of bioethics and explain how it shifted from a paternalistic doctor knows best approach to respect for autonomy, a fundamental value in contemporary bioethics. Subsequent chapters cover advance directives, experimentation on human subjects, the definition of death, physician-assisted dying, abortion, disability, just healthcare systems, the allocation of scarce resources, pharmaceutical drug pricing, assisted reproductive technology, egg donation, surrogate motherhood, sex selection, and the genetic modification of humans. Race and gender are considered throughout, as are the ethical issues raised by pandemics. Steinbock and Menzel consider the controversial questions that surface in the public sphere, explaining the facts, and then evaluating different approaches to resolving them.

What is epidemiology? What are the causes of a new disease? How can pandemics be prevented? Epidemiology is the study of the changing patterns of disease and its main aim is to improve the health of populations. It's a vital field, central to the health of society, to the identification of causes of disease, and to their management and prevention. Epidemiology has had an impact on many areas of medicine; from discovering the relationship between tobacco smoking and lung cancer, to the origin and spread of new epidemics. However, it is often poorly understood, largely due to misrepresentations in the media. In this Very Short Introduction Rodolfo Saracci dispels some of the myths surrounding the study of epidemiology. He provides a general explanation of the principles behind clinical trials, and explains the nature of basic statistics concerning disease. He also looks at the ethical and political issues related to obtaining and using information concerning patients, and trials involving placebos. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.

Why do American Black people generally have worse health than American White people? To answer this question, Black Health dispels any notion that Black people have inferior bodies that are inherently susceptible to disease. This is simply false racial science used to justify White supremacy and Black inferiority. A genuine investigation into the status of Black people's health requires us to acknowledge that race has always been a powerful social category that gives access to the resources we need for health and wellbeing to some people, while withholding them from other people. Systemic racism, oppression, and White supremacy in American institutions have largely been the perpetrators of differing social power and access to resources for Black people. It is these systemic inequities that create the social conditions needed for poor health outcomes for Black people to persist. An examination of social inequities reveals that is no accident that Black people have poorer health than White people. Black Health provides a succinct discussion of Black people's health, including the social, political, and at times cultural determinants of their health. Using real stories from Black people, Ray examines the ways in which Black people's multiple identities--social, cultural, and political--intersect with American institutions--such as housing, education, environmentalism, and health care--to facilitate their poor outcomes in pregnancy and birth, pain management, sleep, and cardiovascular disease.

This book takes as its subject the intensely private discussions that arise when ordinary people confront life and death choices and struggle with decisions in a world of medical and scientific complexity. Laurie Zoloth began her work in bioethics in a large public California hospital system, where she was part of a group tasked with the creation of an ethics committee in every hospital in the system, that would hear hundreds of cases every year, including pediatric cases from the hospital's intensive care, neonatal intensive care, burn, and oncology units. The book explores the dilemmas presented in these cases and reflects on the competing, often incommensurate moral appeals offered by the participants. It then analyzes the cases against and with similar concepts within Jewish thought, using rabbinic texts to make legible the factors at play as one makes ethical judgments. This philosophical position is feminist as it considers and at times advocates for the inclusion of family and community in the rationale of the clinical setting. Intertwined with legal statements in the Talmud are aggadot, or midrashic texts, literary narratives used to argue a point, or to complicate a point, or to deepen the meaning of the communal discourse, adding history, case studies, or fictive tales to the discussion. Zoloth argues that these texts can be usefully applied to problems in bioethics. She develops the case for a textual turn that is fully imagined and enriched by the many possible re-interpretations of narrative: biblical, rabbinic, medieval, modern, and post-modern.

Animals, like humans, suffer and die from natural causes. This is particularly true of animals living in the wild, given their high exposure to, and low capacity to cope with, harmful natural processes. Most wild animals likely have short lives, full of suffering, usually ending in terrible deaths. This book argues that on the assumption that we have reasons to assist others in need, we should intervene in nature to prevent or reduce the harms wild animals suffer, provided that it is feasible and that the expected result is positive overall. It is of the utmost importance that academics from different disciplines as well as animal advocates begin to confront this issue. The more people are concerned with wild animal suffering, the more probable it is that safe and effective solutions to the plight of wild animals will be implemented in the future.

Bioethics, Public Moral Argument, and Social Responsibility explores the role of democratically oriented argument in promoting public understanding and discussion of the benefits and burdens of biotechnological progress.?

The contributors examine moral and policy controversies surrounding biomedical technologies and their place in American society, beginning with an examination of discourse and moral authority in democracy, and addressing a set of issues that include: dignity in health care; the social responsibilities of scientists, journalists, and scholars; and the language of genetics and moral responsibility.? ?

Much discussion of biotechnological advances rests on the rights of individuals to make autonomous choices and on societal decisions not to interfere with willing buyers and sellers. But intensifying democratic debates about key issues like health insurance reform and genetic research have begun to broaden our public vision, to include awareness of cost, a sense of collective responsibility to help others, and the need to work together to set limits we can live with. In scholarly journals, newspapers, magazines, on television, radio, and hundreds of web sites, public moral argument about the benefits and burdens of biotechnology is ubiquitous. Science and society have thus created an increasingly fragmented discourse, which we need to examine together. The book's authors, experts from the sciences and humanities, step beyond their disciplinary boundaries to assume the ethical responsibility of translating their expertise into forms that help promote fruitful public conversation.?

Professor Wilhelm Blasius, physiologist at Giessen in West Germany, has written a book "Probleme der Lebensforschung" (Verlag Rombach, Freiburg 1973) which - I understand - is to be published in an English version. To me it has been of interest as an orientation in a world of traditional German thinking, best known from Goethe's natural philosophy of perceptible "Ur- bilder", which perhaps in English could be rendered descriptively by calling it an inner vision of further irre- ducible totalities. It is in contemporary language a kind of intuitive 'holistic' insight which represents understanding different from that of natural science. The latter is devoted to the study of causal chains, is largely experimental and in its aim ultimately 'reduc- tionist' -to use another modern term. Goethe's approach is reincarnated in the "Wesenslehre" of the late Ludwig Klages (1872-1956) and in the thinking of Carl Gustav Caruso To Klages the perceived image alone is the meaning of everything in this world and in this sense he is the advocate of a psychological phenom- enology that is an end in itself. Originally trained as a chemist Klages soon turned to philosophy and de- veloped a system of concepts supposed to give a deeper insight into the essence of life than did the endless causal chains of natural science. Blasius makes much use of the concepts of this philosopher, in particular his ideas on 'polarities'.

In Nature Ethics: An Ecofeminist Perspective, Marti Kheel explores the underlying worldview of nature ethics, offering an alternative ecofeminist perspective. She focuses on four prominent representatives of holist philosophy: two early conservationists (Theodore Roosevelt and Aldo Leopold) and two contemporary philosophers (Holmes Rolston III, and transpersonal ecologist Warwick Fox). Kheel argues that in directing their moral allegiance to abstract constructs (e.g. species, the ecosystem, or the transpersonal Self) these influential nature theorists represent a masculinist orientation that devalues concern for individual animals. Seeking to heal the divisions among the seemingly disparate movements and philosophies of feminism, animal advocacy, environmental ethics, and holistic health, Kheel proposes an ecofeminist philosophy that underscores the importance of empathy and care for individual beings as well as larger wholes.