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Books > Medicine > Clinical & internal medicine > Diseases & disorders > Infectious & contagious diseases > HIV / AIDS
AIDS strikes most heavily at those already marginalized by conventional society. With no immediate prospect of vaccination or cure, how can liberty, dignity, and reasoned hope be preserved in the shadow of an epidemic? In this humane and graceful book, philosopher Timothy Murphy offers insight into our attempts - popular and academic, American and non-American, scientific and political - to make moral sense of pain. Murphy addresses the complex moral questions raised by AIDS for health-care workers, politicians, policy makers, and even people with AIDS themselves. He ranges widely, analyzing contrasting visions of the origin and the future of the epidemic, the moral and political functions of obituaries, the uncertain value of celebrity involvement in anti-AIDS education, the functional uses of AIDS in the discourse of presidential campaigns, the exclusionary function of HIV testing for immigrants, the priority given to AIDS on the national health agenda, and the hypnotic publicity given to 'innocent' victims. Murphy's discussions of the many social and political confusions about AIDS are unified by his attempt to articulate the moral assumptions framing our interpretations of the epidemic. By understanding those assumptions, we will be in a better position to resist self-serving and invidious moralizing, reckless political response, and social censure of the sick and the dying.
"Mommy, why can`t the doctors make you better?"..."You won`t be there, will you? Who`ll take care of me?"-Rachel, age 5 AIDS breaks the rules of dying. It strikes the young rather than the old, decimating families and devastating communities. It will leave as its legacy a generation of orphans-traumatized by multiple losses, isolation, stigma, and grief. By the turn of the century, more than a hundred thousand children and youth in the United States-and ten million worldwide-will lose their parents to AIDS.Written by professionals in medicine, law, social work, anthropology, psychiatry, and public policy, this volume is the first full-length look at the issues facing children whose parents and siblings are dying of AIDS: what children experience, how it affects them, how we can meet their emotional needs and help them find second families, how we counter the stigmas they face. Authors explore ways to promote resilience in these AIDS-affected children. Stories of the children and their caretakers, told in their own words, are woven throughout.Pioneering and practical, the book presents an action agenda and resource directory for our nation`s policymakers as well as for parents and those who work with children in both formal and informal settings. This book is produced in conjunction with a video, Mommy, Who`ll Take Care of Me? Forgotten Children of the AIDS Epidemic, which will be shown on PBS and is also available from Yale University Press.
The treatment of HIV is perhaps the most demanding and complex aspect of work for today's health care provider. Often the first decision providers and patients make is whether or not to test for the virus; this is only the first in a series of involved--and often troubling--decisions confronting both provider and patient. HIV Care considers many of the diverse elements affecting and affected by this illness, from its physical and neuropsychological manifestations to its legal and financial implications. Addressing concerns about HIV testing, the authors introduce a practical risk assessment tool and discuss some of the subjects and approaches germane to pre- and posttest counseling. Medical management is surveyed, exploring not only traditional therapies but experimental and complementary ones such as acupuncture, exercise, and diet. The psychological, psychosocial, and spiritual impacts of HIV are also considered, often generating conflicting perspectives. Finally, pragmatic issues including housing and home care, financial assistance, and legal issues pertaining to the counseling of HIV-positive patients are presented. Appendixes record laws related to HIV by state, catalog available legal assistance, and list state and national resources for HIV patients. Offering a thorough look at the most recent developments in HIV treatment, this handbook will serve as a powerful reference guide for practitioners in primary care, nursing, and public health, or anyone working with HIV patients. "The authors have compiled an extremely useful and easy-to-use handbook that should be on the desk of all primary care providers who treat HIV-positive individuals. Of particular interest are the legal issues where the state laws for each state are outlined concerning reporting, informed consent, confidentiality, affirmative duty to disclose, quarantine, mandatory testing, and transmission crime. This is a highly recommended book for all medical, public, and academic libraries; but especially for the professional primary care provider. It answers many questions for those who have not had the years of experience of dealing with HIV-positive patients." --AIDS Book Review Journal
The co-discoverer of the AIDS virus tells his story of scientific discovery. Robert Gallo includes an epilogue in which he discusses the reasons for the similarity between the American and French HIV strains, the final report of the Office of Scientific Integrity, why the US government continues to reject French efforts to reopen the patent settlement, and, most important, where we stand today in regard to treatments that will slow down the progress of the disease in those already affected, and vaccines to prevent new infections.
When AIDS was first recognized in 1981, most experts believed that it was a plague, a virulent unexpected disease. They thought AIDS, as a plague, would resemble the great epidemics of the past: it would be devastating but would soon subside, perhaps never to return. By the middle 1980s, however, it became increasingly clear that AIDS was a chronic infection, not a classic plague. In this follow-up to AIDS: The Burdens of History, editors Elizabeth Fee and Daniel M. Fox present essays that describe how AIDS has come to be regarded as a chronic disease. Representing diverse fields and professions, the twenty-three contributors to this work use historical methods to analyze politics and public policy, human rights issues, and the changing populations with HIV infection. They examine the federal government's testing of drugs for cancer and HIV, and show how the policy makers' choice of a specific historical model (chronic disease versus plague) affected their decisions. A powerful photo essay reveals the strengths of women from various backgrounds and lifestyles who are coping with HIV. A sensitive account of the complex relationships of the gay community to AIDS is included. Finally, several contributors provide a sampling of international perspectives on the impact of AIDS in other nations.
The seriousness, potential dimensions, and likely victims of the AIDS epidemic were known as early as 1981, yet the reaction of public and private organizations was shockingly slow and feeble and is even now woefully inadequate. Basing their analysis largely on the hardest hit city, New York, Charles Perrow and Mauro Guillen deliver a passionate, yet well-documented indictment of governmental and private groups for failing to provide the necessary education and care in response to this disaster. In this controversial book the authors describe the patterns of denial, avoidance, and segregation that various organizations exhibited toward the AIDS crisis and its victims. In so doing they extend our theories of organizational dynamics. It is well known that society has an aversion to the major groups threatened or afflicted with AIDS-male homosexuals and, more recently, intravenous drug users and their sexual partners-and that the poor and members of the minorities contribute most heavily to the ranks of the drug users. This situation, Perrow and Guillen argue, results in a stigma that makes AIDS unique among epidemics and contaminates the response of most organizations involved. Society's hostility toward the urban poor bears even more responsibility for the organizational mishandling of the crisis than the economic and ideological preoccupations of the Reagan era and the homophobia of lawmakers and establishment organizations. The second wave of the epidemic, affecting intravenous drug users, and through them, crack users, interacts fatally with growing problems of poverty in the inner cities, where homelessness, joblessness, rising tuberculosis and syphilis rates, crime, and the paucity of strong indigenous community agencies all foster the rapid spread of the disease. What is needed, the authors contend, is an all-out war on AIDS that attacks both sexual discrimination and poverty. The AIDS epidemic, they claim, presents an occasion for redressing long-standing social injustices.
AIDS activists are often romanticized as extremely noble and selfless. However, the relationships among HIV support group members highlighted in Landscapes of Activism are hardly utopian or ideal. At first, the group has everything it needs, a thriving membership, and support from major donors. Soon, the group undergoes an identity crisis over money and power, eventually fading from the scene. As government and development institutions embraced activist demands—decentralizing AIDS care through policies of health systems strengthening—civil society was increasingly rendered obsolete. Charting this transition—from subjects, to citizens, and back again—reveals the inefficacy of protest, and the importance of community resilience. The product of in-depth ethnography and focused anthropological inquiry, this is the first book on AIDS activists in Mozambique. AIDS activism’s strange decline in southern Africa, rather than a reflection of citizen apathy, is the direct result of targeted state and donor intervention.
The HIV epidemic in Bolivia has received little attention on a global scale in light of the country's low HIV prevalence rate. However, by profiling the largest city in this land-locked Latin American country, Carina Heckert shows how global health-funded HIV care programs at times clash with local realities, which can have catastrophic effects for people living with HIV who must rely on global health resources to survive. These ethnographic insights, as a result, can be applied to AIDS programs across the globe. In Fault Lines of Care, Heckert provides a detailed examination of the effects of global health and governmental policy decisions on the everyday lives of people living with HIV in Santa Cruz. She focuses on the gendered dynamics that play a role in the development and implementation of HIV care programs and shows how decisions made from above impact what happens on the ground.
When addressing the factors shaping HIV prevention programs in sub-Saharan Africa, it is important to consider the role of family planning programs that preceded the epidemic. In this book, Rachel Sullivan Robinson argues that both globally and locally, those working to prevent HIV borrowed and adapted resources, discourses, and strategies used for family planning. By combining statistical analysis of all sub-Saharan African countries with comparative case studies of Malawi, Nigeria, and Senegal, Robinson also shows that the nature of countries' interactions with the international community, the strength and composition of civil society, and the existence of technocratic leaders influenced variation in responses to HIV. Specifically, historical and existing relationships with outside actors, the nature of nongovernmental organizations, and perceptions of previous interventions strongly structured later health interventions through processes of path dependence and policy feedback. This book will be of great use to scholars and practitioners interested in global health, international development, African studies and political science.
Drawing on a rich set of interviews and surveys, this book shows how the global AIDS treatment advocacy movement helped millions in the developing world gain access to life-saving medication. The movement achieved this by transforming the market for AIDS drugs from one which was 'low volume, high price' to one based on access for all. The authors suggest that a movement's ability to transform markets depends upon whether: (1) markets are contestable; (2) they have framed their arguments to resonate across their target audiences; (3) the movement itself has a coherent goal; (4) the costs are low, or the benefit-to-cost ratio is favourable; and, finally, (5) institutions are present to reward continued achievement of the new market principle. These insights are applied to a range of other cases including malaria, maternal mortality, water/diarrheal disease, non-communicable diseases, education, climate change, the ivory trade, sex trafficking and the Atlantic slave trade.
Witchcraft and a Life in the New South Africa reconstructs the biography of an ordinary South African, Jimmy Mohale. Born in 1964, Jimmy came of age in rural South Africa during apartheid, then studied at university and worked as a teacher during the anti-apartheid struggle. In 2005, Jimmy died from an undiagnosed sickness, probably related to AIDS. Jimmy gradually came to see the unanticipated misfortune he experienced as a result of his father's witchcraft and sought remedies from diviners rather than from biomedical doctors. This study casts new light on scholarly understandings of the connections between South African politics, witchcraft and the AIDS pandemic.
Access the latest information available in the challenging area of HIV/AIDS management with Sande's HIV/AIDS Medicine, 2nd Edition. Authored by a veritable "who's who" of current global experts in the field, this medical reference book will provide you with all the practical, indispensable guidance you'll need to offer your patients the best possible care. Access reliable, up-to-the-minute guidance that addresses the realities of HIV/AIDS management in your geographical region, thanks to contributions from a global cast of renowned expert clinicians and researchers. Locate the clinically actionable information you need quickly with an organization that mirrors the current state of the AIDS epidemic and the different needs of Western vs. developing-world patients and clinicians. Diagnose AIDS manifestations confidently by comparing them to clinical images. Improve patient outcomes with the latest findings on the management of AIDS as a chronic illness. Efficiently review essential data through numerous at-a-glance tables. Get the most relevant information available on pediatric HIV and AIDS issues; anti-retroviral drugs, including integrase inhibitors; and the use of second- and third-line anti-retroviral drugs in resource-poor settings. Stay current on the latest actionable information, such as using antiretroviral therapy in patients with tuberculosis and drug-resistant tuberculosis; antiretroviral therapy; immune reconstitution inflammatory syndromes (IRIS); and implementation of the HPV vaccine. The very latest in HIV/AIDS management from global experts with a concise approach and a clinical/practical focus.
The AIDS epidemic soured the memory of the sexual revolution and gay liberation of the 1970s, and prominent politicians, commentators, and academics instructed gay men to forget the sexual cultures of the 1970s in order to ensure a healthy future. But without memory there can be no future, argue Christopher Castiglia and Christopher Reed in this exploration of the struggle over gay memory that marked the decades following the onset of AIDS. Challenging many of the assumptions behind first-wave queer theory, If Memory Serves offers a new perspective on the emergence of contemporary queer culture from the suppression and repression of gay memory. Drawing on a rich archive of videos, films, television shows, novels, monuments, paintings, and sculptures created in the wake of the epidemic, the authors reveal a resistance among critics to valuing-even recognizing-the inscription of gay memory in art, literature, popular culture, and the built environment. Castiglia and Reed explore such topics as the unacknowledged ways in which the popular sitcom Will and Grace circulated gay subcultural references to awaken a desire for belonging among young viewers; the post-traumatic (un)rememberings of queer theory; and the generation of "ideality politics" in the art of Felix Gonzalez-Torres, the film Chuck & Buck, and the independent video Video Remains. Inspired by Alasdair MacIntyre's insight that "the possession of a historical identity and the possession of a social identity coincide," Castiglia and Reed demonstrate that memory is crafted in response to inadequacies in the present-and therefore a constructive relation to the past is essential to the imagining of a new future.
This publication is a multi-authored investigation into HIV reporting in South Africa, and combines journalism with research to present an analysis that is at once broad in its scope and focused on the important issues. What is left unsaid: Reporting the South African HIV epidemic is a collection of work produced by the fellows of the HIV/AIDS & the Media Project, started by Helen Struthers and Anton Harber in 2003. It contains a selection of the best journalism and research produced by the Media Project Fellows, which gives an important insight into the history and key issues of South African health politics and media reporting on HIV in the last decade. The texts range from in-depth quantitative and qualitative research documents to radio and television transcripts and candid interviews. The title's first section contains research and news reporting reflecting on how the media has reported HIV-related issues, while the second section consists of reporting on pertinent aspects of HIV: stigma, denial, disclosure; PMTCT; orphans and vulnerable children; abstinence and faithfulness; and traditional healers. Each half informs and elucidates the other and works to, as journalism should, shine a light on one the world's most pressing concerns, both at the grassroots and higher levels, and give a voice to those whose voices are often not heard against the din of political controversy that surrounds HIV.
A New York Times Notable Book of 2007 "The Invisible Cure" is an account of Africa's AIDS epidemic from the inside--a revelatory dispatch from the intersection of village life, government intervention, and international aid. Helen Epstein left her job in the US in 1993 to move to Uganda, where she began work on a test vaccine for HIV. Once there, she met patients, doctors, politicians, and aid workers, and began exploring the problem of AIDS in Africa through the lenses of medicine, politics, economics, and sociology. Amid the catastrophic failure to reverse the epidemic, she discovered a village-based solution that could prove more effective than any network of government intervention and international aid, an intuitive response that calls into question many of the fundamental assumptions about the AIDS in Africa. Written with conviction, knowledge, and insight, "The Invisible Cure" will change how we think about the worst health crisis of the past century--and indeed about every issue of global public health.
This work includes a foreword by Jeffrey Koplan, Vice President, Academic Health Affairs, Emory University, Atlanta, Formerly Director, Centers for Disease Control and Prevention (CDC). This groundbreaking new book blows apart the myths about who is at risk of getting AIDS and shows how these myths are driven by moral and political pressures. It provides an objective, logical, clear, epidemiologically based analysis on the current situation and situates itself firmly at marked variance with the politically correct position of UNAIDS and most AIDS activists. "The AIDS Pandemic" argues that the story of HIV has been distorted by UNAIDS and AIDS activists in order to support the myth of the high potential risk of HIV epidemics spreading into the general population. In the past, most policy makers and members of the public have uncritically accepted UNAIDS' high prevalence estimates and projections when in fact lower HIV prevalence estimates are more accurate. Time, money and resources are being wasted worldwide. This book is full of fresh analysis for all people working in any capacity in HIV/AIDS programmes. It will be invaluable to undergraduate and postgraduate healthcare students, health and social care professionals and the international media. Policy makers and shapers will find the pioneering information crucial to the future of the AIDS strategy. 'For close to a half century, my work as a public health epidemiologist has involved field research, program management, and teaching, mostly on public health surveillance and prevention and control of communicable diseases. [Since 1981] I have been involved virtually full time with the international response to the AIDS pandemic which is without question one of the most severe infectious disease pandemics in modern times. During my public health career that began in the early 1960s, I have always been considered a part of conventional or mainstream medical science. However, since the mid-1990s, I have found myself swimming upstream against mainstream AIDS organisations. I have, during this period, gradually come to the realisation that AIDS programs developed by international agencies and faith based organizations have been and continue to be more socially, politically, and moralistically correct than epidemiologically accurate.' - James Chin, in the Preface. 'Controversy and differing opinions have been hallmarks of the AIDS epidemic since its onset. The scope of the problem, how to identify high risk groups without increasing the burden of stigma, the safety of blood products, the best balance between prevention and treatment, have all been hot issues sometimes dividing the public health community. The passion and conflicts about how to consider and address the AIDS pandemic reflect the huge impact this disease has had globally and its interplay with macro economic, legal, social, political, national security and ethical domains. Vital, provocative, thoughtful, direct, passionate, rational and willing to challenge conventional wisdom. "The AIDS Pandemic" is filled with information, rational arguments and opinions, often intermingled. It is a rare book on epidemiology that puts so much of the author's personality and viewpoints, along with his knowledge and experience, before the reader. The result is a thought-provoking, likely-to-be-controversial, contribution to the AIDS literature that should engage and stimulate the reader.' - Jeffrey Koplan, in the Foreword.
This study brings together health-care professionals and scholars from a variety of disciplines who seek to understand, and prevent, the transmission of HIV. The biological and social factors concerned with the spread and impact of HIV/AIDS has resulted in dedicated research from each of the disciplines and provided unique insights into the disease. By assembling their insights in one multidisciplinary volume, this book provides a more complete picture of the complex disease, and demonstrates why preventing the spread of HIV will require interdisciplinary collaboration.
AIDS is not solely a medical issue but also has profound implications for social and family relationships. Traditionally when a person is ill, the family is seen to provide emotional, practical and social support. Experience has shown, however, that AIDS disrupts this conventional pattern of support. On the one hand AIDS, like any other serious illness, affects family members both from day to day and in the long term. What distinguishes AIDS from so many other illnesses is the associated social stigma and the fact that HIV may be transmissible, or may have been transmitted, within a relationship. Most psychological and social research has concentrated on the impact of AIDS on individuals. Only recently has attention turned to the effect of AIDS on the family. This is the first book to address AIDS in the family and draws on the work of experienced researchers and practitioners from around the world. It is most fitting that the book should first be published in 1994, the United Nations International Year of the Family. Recognizing the role of the family may mark a change in emphasis in future social research and policy in relation to HIV and AIDS.
AIDS Alibis tackles the cultural landscape upon which AIDS, often accompanied by poverty, drug addiction, and crime, proliferates on a global scale. Stephanie Kane layers stories of individuals and events -- from Chicago to Belize City, to cyberspace -- to illustrate the paths of HIV infection and the effects of environment, government intervention, and social mores. Linking ordinary yet kindred lives in communities around the globe, Kane challenges the assumptions underlying the use of police and courts to solve health problems. The stories reveal the dynamics that determine how the policy decisions of white-collar health care professionals actually play out in real life. By focusing on life-changing social problems, the narratives highlight the contradictions between public health and criminal law. Look at how HIV has transformed our social consciousness, from intimate touch to institutional outreach. But, Kane argues, these changes are dwarfed by the United States's refusal to stop the war on drugs, in effect misdirecting resources and awareness. AIDS Alibis combines empirical and interpretive methods in a path-breaking attempt to recognize the extent to which coercive institutional practices are implicated in HIV transmission patterns. Kane shows how th e virus feeds on the politics of inequality and indifference, even as it exploits the human need for intimacy and release.
Features a collection of seven research-based articles on AIDS. This work seeks to cut through popular misunderstanding and conventional ideas about the spread and impact of AIDS by employing a political economic perspective in the analysis of the epidemic in diverse settings.
The title of this book is taken from Albert Camus, who wrote, "In the midst of winter, I finally learned that there was in me an invincible summer." Indeed, the AIDS epidemic has hit like a cold blizzard in the gay community and in inner cities afflicted by high levels of drug abuse. In the Midst of Winter chronicles the brave struggles of families, couples, and individuals caught in that storm and speaks to their strengths, as well as to those of their therapists, even in the bleakest of circumstances. Powerful and practical, immediate and inspiring, it shows the way through the storm to the "invincible summer."
AIDS is the number one health issue facing the nation today. The way in which AIDS relates to substance abuse is explored by drug abuse researchers in this timely volume. A major focus of AIDS and Alcohol/Drug Abuse is on the problems of conducting AIDS research on racial minorities in this country. Bringing together experts in the field, this volume examines the specific obstacles and challenges researchers have faced in assessing and addressing the needs of underserved populations and maps routes and procedures that can improve both research and available health care services.This unique volume also focuses on aspects of HIV infection that have received little attention elsewhere. It includes the first information published in the open literature about intravenous drug use in Alaska. Another chapter highlights some little-known facts that relate substance abuse to HIV infection in the American Indian/Alaskan Native population, among whom--it has been predicted--a devastating epidemic of HIV infection is likely. Problems with prevention, research, and treatment of individuals who are both intravenous drug users and who are infected with HIV are explored. Other chapters look at the transmission of HIV infection--by gay men who are alcoholics and by intravenous drug users. AIDS and Alcohol/Drug Abuse ends with hopeful chapter for AIDS prevention. Readers interested in the relationship of intravenous drug use and HIV infection, particularly among racial and ethnic minorities, will find this to be a practical, readable book. In particular, substance abuse counselors and researchers, and anyone involved in the AIDS prevention movement will find a valuable wealth of information.
Skin diseases are common problems in patients with HIV infection and AIDS. Patients with HIV infection may present first to the dermatologist or to many other groups of physicians. This book is designed to help dermatologists and nondermatologists alike to recognize the cutaneous manifestations of HIV infection and AIDS so that diagnosis can be made quickly and therapy begun as soon as possible. It covers the entire spectrum of HIV associated cutaneous diseases and emphasizes how they present in immunocompromised patients. Each entity is discussed in detail, including clinical presentation, histopathological findings, morphology and treatment. The text is accompanied by colour photos of the highest quality. The latest treatments are described, including Highly Active Antiretroviral Therapy (HAART). While HAART has transformed the lives of patients with HIV and AIDS, these medications have side effects and the authors reinforce the warning that HAART is not a cure.
Analogous to other infections, evidence suggests that improved micronutrient intake may reduce HIV transmission and progression, as well as morbidity from common and opportunistic infections. This is important information, considering many in the world's HIV-infected population do not yet have access to anti-retroviral drugs. Micronutrients and HIV Infection presents current knowledge on the role of micronutrients in HIV and other infections - knowledge that can be used to improve case management and public health interventions.
In the first part of this thought-provoking book, moral theologians address the worldwide AIDS pandemic and illustrate the complexity of HIV prevention and treatment within the context of local issues and cultural concerns in twenty-six cases from Africa, Asia, Australia, Europe, Latin America, and North America. In the second part, essays by well-known theologians home in on the fundamental moral issues involved and demonstrate how the Roman Catholic tradition can help in constructively mediating the moral conundrum of HIV/AIDS prevention and treatment. A concluding essay by Kevin Kelly focuses on the challenges AIDS presents to moral theology at the beginning of the new millennium. |
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