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Books > Social sciences > Sociology, social studies > Social institutions > Death & dying > General
How the legalization of assisted dying is changing our lives. Over
the past five years, medical aid-in-dying (also known as assisted
suicide) has expanded rapidly in the United States and is now
legally available to one in five Americans. This growing social and
political movement heralds the possibility of a new era of choice
in dying. Yet very little is publicly known about how medical
aid-in-dying laws affect ordinary citizens once they are put into
practice. Sociological studies of new health policies have
repeatedly demonstrated that the realities often fall short of
advocacy visions, raising questions about how much choice and
control aid-in-dying actually affords. Scripting Death chronicles
two years of ethnographic research documenting the implementation
of Vermont's 2013 Patient Choice and Control at End of Life Act.
Author Mara Buchbinder weaves together stories collected from
patients, caregivers, health care providers, activists, and
legislators to illustrate how they navigate aid-in-dying as a new
medical frontier in the aftermath of legalization. Scripting Death
explains how medical aid-in-dying works, what motivates people to
pursue it, and ultimately, why upholding the "right to die" is very
different from ensuring access to this life-ending procedure. This
unprecedented, in-depth account uses the case of assisted death as
an entry point into ongoing cultural conversations about the
changing landscape of death and dying in the United States.
The two volumes of Death, Dying, and the Ending of Life present the
core of recent philosophical work on end-of-life issues. Volume I
examines issues in death and consent: the nature of death, brain
death and the uses of the dead and decision-making at the end of
life, including the use of advance directives and decision-making
about the continuation, discontinuation, or futility of treatment
for competent and incompetent patients and children. Volume II, on
justice and hastening death, examines whether there is a difference
between killing and letting die, issues about physician-assisted
suicide and euthanasia and questions about distributive justice and
decisions about life and death.
"The death of a child," writes Myra Bluebond-Langner, "poignantly
underlines the impact of social and cultural factors on the way
that we die and the way that we permit others to die." In a moving
drama constructed from her observations of leukemic children, aged
three to nine, in a hospital ward, she shows how the children come
to know they are dying, how and why they attempt to conceal this
knowledge from their parents and the medical staff, and how these
adults in turn try to conceal from the children their awareness of
the child's impending death.
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