How can we measure the quality of life in children and adolescents with chronic disease?
Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents.
Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.

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This book focuses on predictive, preventative and personalized medicine (PPPM) and how it is related to the healthcare of rare diseases. Readers will discover how advanced rare diseases healthcare provides an excellent proof-of-principles for the personalisation of healthcare systems on a global scale. These chapters look at national plans on rare diseases, at biobanking, gene identification in rare diseases, mitochondrial diseases, rare cancers and virus gene therapy, amongst other topics. There is a chapter dedicated to personalized medicine for hereditary deafness and another exploring the complexity of genotype-phenotype correlations. Specific diseases such as Fabry's, Gauchers and mitochondrial cytopathies are highlighted and we look at enzyme replacement therapy in lysosomal storage diseases. This work is part of a series, produced with the involvement of the European Association for Predictive, Preventive and Personalised Medicine. The series focusses on the concept of an integrative medical approach by PPPM. This volume is dedicated to all aspects related to the prediction, prevention and personalised treatments of rare diseases, and in doing so it explores developments relevant to all medical branches. The authors cover ethical considerations, the creation of a robust platform for professional communication, synergies with patient organisations, doctor-patient collaboration and a new philosophy of integrative medicine by PPPM. This volume serves as a reference source for scientific and medical centres in the field and can be used both at medical curricula and graduate level in the life sciences. Those who place a special emphasis on healthcare promotion and innovations intended to combat rare diseases, save the affected lives and enhance life quality will all find this book of great value."

'Joe is Joe, a different label is not going to make him suddenly think he is someone else' (Joe's Mum)

Quotations like this about five year old Joe are used to illustrate this text, which draws on the experience of learning disabilities in the family. Peter Burke and Katy Cigno provide helpful definitions and reflect on some preliminary, but important theoretical ideas linking to social exclusion and vulnerability. Drawing on research and experience, different aspects of family lives are illustrated in all their diversity. The implications of stressful times, major upheavals and transitions for family members are examined in detail, indicating when help from professionals should be readily available.

"Learning Disabilities in Children "introduces the theory relating to learning disabilities from the family perspective, and includes an examination of support systems for parents, caregivers and siblings. The authors emphasize why contact from service providers is necessary, particularly those based in health, education and welfare agencies. In addition, the need to give power to children and families as a multi-agency responsibility is addressed, with the aim of promoting positive practice in the professional sector for the benefit of the children involved.

"Learning Disabilities in Children "is a useful resource for postgraduates specializing in child welfare, social work and community care. It will also be of interest to social workers, community caregivers, healthcare professionals and teachers, as well as to families where there is a child with learning disabilities.

Key features:
*Based on the experience of families with children who have learning disabilities
*A practical guide for professionals and care givers seeking to clarify and understand family needs
*Explains how a more inclusive partnership between children, their families and professionals may be achieved
*Includes a chapter on child development
*Provides a unifying framework for working in the complex field of childhood learning disabilities.

Learning Disabilities in Children is a useful resource for postgraduates specializing in child welfare, social work and community care. It will also be of interest to social workers, community caregivers, healthcare professionals and teachers, and families where there is a child with learning disabilities.

Crying is a typical human expression of emotion. Surprisingly, until now little scientific attention has been devoted to this phenomenon. Many textbooks on emotion fail to pay attention to it, and in scientific journals there are hardly any contributions focusing on this behavior. In contrast, there is much interest from the lay public, allowing pseudo-scientists to formulate theories that have little or no scientific basis. Is there any evidence in support of statements that crying is healthy or that not crying may result in toxification? How do people react to the crying of others? Is crying important for the diagnosis of depression, and if so, how? This book aims to fill this gap in scientific literature. Crying is discussed from several perspectives and specific attention is given to methodological issues and assessment. Each chapter provides a review and a summary of the relevant scientific literature.

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This title is based on the results of a project based at the Tavistock Clinic in London which set out to explore whether children and young people aged nine years to fifteen years suffering from depression could be helped using brief focused psychodynamic psychotherapy together with parent work and family therapy. There were also centres in Athens,

When a child without a fully developed language experiences physical and psychological stress that exceeds the child's capacity to cope, the experience can leave lasting marks, unless the child receives treatment.Infant therapy is a method inspired by the work of the French pediatrician and psychoanalyst Francoise Dolto and her student Caroline Eli

Communication problems in children that are best described as pragmatic in nature have been a focus of attention for some years. However, despite this, speech and language therapists, teachers and researchers still have some difficulty describing, defining and explaining such problems. This book gives an up to date synthesis of work in the field of childhood pragmatic problems and provides both an introduction and more detailed consideration of this complex area.

Aspects covered include conversational analysis, speech and communicative acts, reference, narrative, pragmatic comprehension and relevance. Each chapter contains exercises with discussion, notes on normal development and illustrative clinical data from children, as well as recent research in the area.

Most parents have worried about the side effects and possible long-term consequences of administering a particular medication to their child. The medication may be available over-the-counter, like cough syrup, or it may be prescribed by a doctor, like an antibiotic. Parents want to know: Is the medication safe? Is it effective? Will it help my child? A pediatric pharmacist for nearly thirty years, Edward A. Bell has spent his career listening carefully to parents' concerns. In Children's Medicines, Bell draws on the latest scientific information, coupled with his experience in hospital and clinic settings, as a university professor, and as a parent, to answer questions about whether, when, and what medications to give to infants, children, and teenagers. Bell touches on practical issues of medication administration and explores areas of particular concern for parents. Inside the book, readers will find* information to help parents weigh the benefits and risks of medicines * an explanation of why some adult medications are not safe for children * descriptions of medicine for treating fever and common illnesses* practical tips on measuring, flavoring, and administering medicines* directions for giving medicine in the mouth, the nose, the ear, and the eye * advice for keeping children of any age safe around medications * facts about vaccinations: how they work, which ones are recommended, and their safety * a guide to the FDA's approval process for use of medicines by children* information about drug pricing, expiration dates, and storing medicine at home* a chapter on ADHD and the treatment of adolescent depression that takes into account the long-term side effects of antidepressants* details about the use of herbal and complementary therapies, including probiotics and vitamins * a discussion of over-the-counter cough/cold products* information on which websites to use for accurate medical and drug information Full of information helpful to parents, grandparents, and others who provide care for children, Children's Medicines is a reliable and insightful guide to how drugs for children of all ages are prescribed and used.

Ancient Egyptian medicine employed advanced surgical practices, while the prevention and treatment of diseases relied mostly on natural remedies and magical incantations. In the first of three volumes, The Medicine of the Ancient Egyptians explores these two different aspects, using textual sources and physical evidence to cast light on the state of ancient medical knowledge and practice and the hardships of everyday life experienced by the inhabitants of the land on the Nile. The first part of the book focuses on ancient Egyptian surgery, drawing mainly on cases described in the Edwin Smith papyrus, which details a number of injuries listed by type and severity. These demonstrate the rational approach employed by ancient physicians in the treatment of injured patients. Additional surgical cases are drawn from the Ebers papyrus. The chapters that follow cover gynecology, obstetrics, and pediatric cases, with translations from the Kahun gynecological papyrus and other medical texts, illustrating a wide range of ailments that women and young children suffered in antiquity, and how they were treated. Illustrated with more than sixty photographs and line drawings, The Medicine of the Ancient Egyptians is highly recommended reading for scholars of ancient Egyptian medicine and magic, as well as for paleopathologists, medical historians, and physical anthropologists.

Clinics in Developmental Medicine No.166

Ranging from epidemiology and neuroimaging through the general principles of surgery and radiotherapy/chemotherapy to issues of palliative care and quality of life, this concise, broad-ranging and practical text covers all clinical aspects of central nervous system tumours in children. It provides an overview of current important issues in diagnosis and management, and focuses on important areas of research, with an emphasis on the areas likely to impact on clinical practice. It will be essential reading for paediatric oncologists, medical and clinical oncologists, neurosurgeons, and paediatricians involved in the care of children with brain tumours, trainees in these and related specialties, specialist nurses and paramedical staff.

This book, focusing on the work of Jacques Lacan, examines psychosis in children, without ignoring the study of neurosis in childhood and concentrates on autism as produced by psychic disorders, by the symbolic failure that brings about the inclusion of the subject into the psychotic structure.

This book draws on the experience of some eighty severely deprived children referred for individual psychoanalytic psychotherapy to the Tavistock and other clinics and schools in the London area. It describes how child psychotherapists found themselves treating the severely deprived children.

A much-needed, up-to-date guide to the clinical management of kidney disorders in children and adolescents, this text presents the essentials of diagnosis and treatment in this important field, with an indication of when referral to, or consultation with, the pediatric nephrologist is needed. With a team of international contributors who have had a significant global impact on the development of pediatric nephrology, this user-friendly resource takes the findings of specialists to a much wider audience in training and in primary care.

Answering the demand for acomprehensive, all-purpose volume focusing on the challenging needs of pediatric patients, Mechanical Support for Cardiac and Respiratory Failure in Pediatric Patients summarizes a wealth of knowledge on the mechanical devices, clinical management, alternative applications, and future directions in the specialized field of pediatric critical care. Condensed advice from experts on the shelf offers guidance in critical intensive care settings! Combining clinical aspects with the latest experimental results, Mechanical Support for Cardiac and Respiratory Failure in Pediatric Patients -examines current modalities and the best uses of mechanical support, including step-by-step techniques for extracorporeal membrane oxygenation (ECMO), ventricular assist devices (VAD), and intra-aortic balloon pumps -highlights the use of mechanical support in nonsurgical diseases such as myocarditis and cardiomyopathy, with implanted ventricular devices and in long-term follow-up care -discusses the optimal management for perioperative support in cardiac and pulmonary transplantations in children -reviews successful cases of mechanical support, including resuscitation after cardiac arrest, pediatric patients with myocarditis, and circulatory support of patients without cardiac disease -explores anticipated improvements and uses of the Berlin Heart, the Nimbus Rotary Pump, and applications of the Medos-HIA VAD in young patients -and much more! Authored by nearly 40 internationally recognized experts and containing over 500 literature references, drawings, photographs, and tables, Mechanical Support for Cardiac and Respiratory Failure in Pediatric Patients is an invaluable referencefor cardiologists and pediatric cardiologists, intensivists, cardiac surgeons, pulmonologists, anesthesiologists, general pediatricians, nursing personnel, perfusionists, and medical school students in these disciplines.

This important volume explores children s needs in the context of the policy, practice, legal and organisational responses to child sexual abuse. The chapters, written by distinguished experts in the field, provide a critical appraisal of recent developments and key debates concerning how to respond to child sexual abuse. The emphasis is on keeping the child central in responding to child sexual abuse, particularly in the context of refocusing children s services . The book is organised around a series of themes identified by survivors of sexual abuse from the National Commission into the Prevention of Child Abuse. These themes include justice mediation advocacy confidentiality communication treatment healing & surviving family support community perpetrators institutional abuse. All of these areas provide major challenges to professionals and health, welfare and legal agencies. The authors provide practitioners with suggestions on how to meet children s needs whilst satisfying policy and procedures. This timely volume

• provides a child-focused exploration of children s needs
• tackles key sources of conflict in practice
• makes recommendations to practitioners for practice and policy development

This is a story from inside the child psychologist's room. Victor, who is two and a half years old, has lost his mother and younger brother in a car accident. He is 'sunny and happy' and does not cry. He is a child in deep crisis and comes for a crisis therapy. In this book we will follow Victor for his fifteen treatment sessions. He shows through

Children bereaved by the death of one parent at the hands of the other, almost always the father, in effect lose both parents. The children are then uprooted, losing their home and, quite often, their familiar routine and essential relationships. The combined effects of trauma, dislocation and loss are dramatic, but little has been written so far about such tragedies and the implications for everyone concerned in the future of affected children. The authors of "When Father Kills Mother" all have special experience of treating such children. They discuss the importance of debriefing children immediately after they have witnessed violence and indicate what therapeutic help will be of most value to both the children and their carers. They examine the legal aspect of the tragedy, not only the civil rights of children and their role as witnesses, but the role of social workers, guardians and courts as decision-makers for the children. Difficult practical problems are all considered from the children's point of view as the authors seek answers to such questions as: where should the children live?; how should their future be planned?; and should they see their fathers in prison?

An ideal resource for both pediatricians and endocrinologists, Sperling's Pediatric Endocrinology, 5th Edition, brings you fully up to date with accelerating research; new discoveries in metabolic, biochemical and molecular mechanisms; and the resulting advances in today's clinical care. The editorial team of world-renowned pediatric endocrinologists led by Dr. Mark Sperling, as well as expert contributing authors, cover comprehensive and current aspects of both basic science and clinical practice. Whether you're preparing for certification or have extensive clinical experience, this detailed, authoritative reference helps you increase your knowledge and determine the best possible course for every patient. Delivers trusted guidance in every area of the field: including Endocrine Disorders of the Newborn, Endocrine Disorders of Childhood and Adolescence, and Laboratory Tests. Features new topics such as transgender issues in children and adolescents and endocrinology of pregnancy, the fetus and the placenta. Offers expert coverage of hot topics such as disorders of sexual development, molecular basis of endocrine disorders, hypoglycemia in newborns and infants; neonatal and other monogenic forms of diabetes; Type I and Type II diabetes and their treatment with new insulins together with the progress in an artificial pancreas and new medications for T2DM in adolescents; the obesity epidemic and role of bariatric surgery; and advances toward personalized medicine. Includes easy-to-follow algorithms and numerous quick-reference tables and boxes in every clinical chapter, plus interactive questions online for self-assessment. Offers state-of-the-art information and fresh perspectives from new and award-winning authors in such areas as disorders of growth, multiple endocrine tumors, and puberty and its disorders in girls and boys. Enhanced eBook version included with purchase. Your enhanced eBook allows you to access all of the text, figures, and references from the book on a variety of devices.

Through five successful editions, Park's The Pediatric Cardiology Handbook has been the go-to portable reference for fundamental and practical information on the diagnosis and management of children with congenital and acquired heart disease. In the fully updated 6th Edition, Dr. Myung K. Park is joined by new co-author Dr. Mehrdad Salamat in providing concise, authoritative guidance for pediatricians, cardiology fellows, family practitioners, medical students, and more. Designed as a companion to Dr. Park's larger text, Pediatric Cardiology for Practitioners, this pocket-sized resource features useful diagrams, summary tables, helpful images, and clear descriptions of disorders-perfect for healthcare professionals in practice or in training. Access to this product, which may be at the discretion of your institution, is up to 3 years of online and perpetual offline access. Elsevier reserves the right to restrict or remove access due to changes in product portfolio or other market conditions. Provides extensive updates on congenital heart defects, infective endocarditis, cardiomyopathies, cardiac arrhythmias, long QT syndrome, blood pressure,systemic hypertension, dyslipidemia and Kawasaki disease Includes new recommendations on lipid screening for children, preventive cardiology including childhood obesity, sport participation using new 14-point evalaution as well as the normative blood pressure standards for auscillometric and oscillometric methods obtained in the San Antonio Children's Blood Pressure Study. Offers an expanded section on two-dimensional echocardiography, along with detailed normative values of echocardiography in the appendix. Covers the newest approaches in the area of cardiac surgery, such as hybrid procedures as well as non-surgical, percutaneous management of certain heart defects. Enhanced eBook version included with purchase. Your enhanced eBook allows you to access all of the text, figures, and references from the book on a variety of devices.

Working with Latino Youth offers counselors, teachers, social workers, therapists, and other professionals-no matter what their level of experience or cultural background-an accessible and practical guide for working effectively with Latino children and adolescents. This vital resource, which integrates development, culture, and psychological intervention, helps meet the challenge of addressing an array of culturally specific problems such as assimilation, discrimination, scholastic failure, pregnancy, substance abuse, and delinquency. The authors, Joan D. Koss-Chioino and Luis A. Vargas, present a dynamic new model for working with Latino youth that considers the individual within the context of their families, their communities, and their culture.

"At a time when America and its professionals increasingly need to be responsive to the diversity of cultures, Koss-Chioino and Vargas have authored a comprehensive overview of Latino youth, who are rich in their own diversity. This highly readable book provides a wealth of information and examples about a 'new ethnic majority' to assist practitioners in their approaches not only with Latino children and families, but also with applicability to a variety of cultures through the contextual model these authors describe."--Michael C. Roberts, professor and director, Clinical Child Psychology Program, University of Kansas

Occupational Therapy for Child and Adolescent Mental Health is a practical textbook which provides occupational therapists working in this area with a theoretical framework for practice. It outlines the work of the occupational therapist in this area of mental health and introduces a variety of theoretical approaches and therapeutic interventions used with child and adolescent mental health clients. The role of the occupational therapist as part of a multidisciplinary team is emphasised throughout. This textbook will fill a real gap in the literature for occupational therapists, students and practitioners alike. It will alsobe welcomed by members of the other health care professions in the multidisciplinary team who need to understand each others roles so that they may work together more effectively.Addresses an area in which many occupational therapists are now likely to become involved and which is now receiving more attention within the student curriculum Covers the full range of pre-adult age groupsWritten by a team of highly experienced therapists with many years of experience in the field Includes examples of practice by international contributors (eg USA and New Zealand )Includes relevant theory and presents it related to practice both in the community and in specialised units

This book challenges the very idea of "profound and multiple learning disabilities" (PMLD) itself, and what constitutes appropriate educational provision for children described as having PMLD. It considers the role of ambiguity in articulating the life-worlds of children with PMLD.

This book offers a most interesting view of the application of the Winnicott squiggle game outside the context of therapeutic consultations. It concentrates on describing the inner mechanisms for coping which came to light in the psychoanalytical squiggle interviews with the children.

The Borderline Psychotic Child reviews the history and evolution of the borderline diagnosis for children, both in the USA and the UK, bringing the reader up to date with current clinical opinion on the subject. Using a range of clinical case studies, the book attempts to harmonise US and UK views on borderline diagnosis in the light of new developments in theory at The Menninger Clinic, The Anna Freud Centre and The Tavistock Clinic. Providing an introduction to the borderline concept, and a systematic overview of current theoretical thinking and clinical practices from leading practitioners in the field, The Borderline Psychotic Child will make informative reading both for professionals and students in the field of child analysis.

Children bereaved by the death of one parent at the hands of the other, almost always the father, in effect lose both parents, and are often forgotten in the midst of such dramatic situations. Reflecting the increased interest in child protection and child law systems, this second edition of When Father Kills Mother brings to public knowledge, in amplified form information about the effects of psychological trauma and bereavement on children. By combining knowledge about bereavement with that of post-traumatic stress disorder, the book remains informative and essential reading for all those involved in the field, both professionally and personally.

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